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Just started hydroxychloroquine. Rheumatologist wants to get me off Pred 15mg to 10 and thinks that is better with less side effects. Anyone have feedback on that drug?

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Replies to "Just started hydroxychloroquine. Rheumatologist wants to get me off Pred 15mg to 10 and thinks that..."

Hello @mezack25,

I combined your question on hydroxychloroquine with an existing discussion in the PMR support group titled:

"Are you taking Plaquenil (Hydroxychloroquine) for PMR?"
- https://connect.mayoclinic.org/discussion/are-you-taking-plaquenil-hydroxychloroquine-for-pmr/

This discussion was started by @wilckdds and members @menetski4, @reets70 and @jrp11948 all joined the discussion to share their experiences.

@mezack25, you mentioned your provider wanted you to get off of prednisone because of side effects, were you experiencing them?

My prednisone dose is so low, 3 mg that I am not too concerned anymore about prednisone. I have been on the hydroxy 7 months and am starting to have side effects like fatigue subcutaneous bleeding neuropathy in feet and nausea. But I think a couple other meds that take have similar possible side effects and when I added the hydroxy it just made these symptoms show up. So will see rheumatoid doc soon to seek alternative medication.

It’s a good drug. It has helped me through many painful episodes for the last 19 years. I will take it for the rest of my life if I have to. I’ve have had no side effects at all. I don’t know if it helped with PMR pain because I am still suffering with that pain every morning, but I think recovery is much faster with hydroxy.