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Anyone out there with Thymoma/Thymic Carcinoma

Cancer | Last Active: Sep 3, 2023 | Replies (136)

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@allisonsnow

Those are the same two drugs I took. What I can tell you is that I was started at 100% strength I lost all my hair after the 2nd treatment. I struggled with nausea and they just gave me very effective drugs for that I didn't eat but I didn't really lose much weight. Pain was an issue so my levels were reduced. I didn't feel anybetter but I didn't get worse. As far as this decease goes I considered it worked.I did not get another recurrence for 3 yrs used a couple different drugs (when I asked why not the same dr.s said they thought! it doesn't work as well the second time) anyway didn't matter half way thru it was clear it was not working so we discontinued. We expected some explosion of growth and a dire outcome but instead it stop growing.
so now just waiting This may sound like a sob story but it really is not

I am alive iget to see my grandchildren every week I even saw 2 be born since I got my initial DX of 6 months to live 9 years of living
Yes has there been a lot of suffering I suppose physical ,mental and emotional. more to share but I have a gransdson to put to bed so that's all I want to get into

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We will stay positive and offer all the support he needs. I can see the internal struggle he is having. He wants to get well. We just need to keep him moving after chemo. I’ll report back. Thank you so much. - Gail