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Anyone out there with Thymoma/Thymic Carcinoma
Cancer | Last Active: Sep 3, 2023 | Replies (136)Comment receiving replies
Hello @gailkattouf and welcome to Mayo Connect.
I can understand your concern for your dad. I am glad that you persisted in trying to find a diagnosis for him. He is fortunate to have you advocating for him with his medical problems.
We have quite a few members who have discussed this type of cancer, including @allisonsnow. You will probably hear from Allison as well as others in this discussion group.
While I don't have any personal experience with this kind of cancer, I do have a rare type of cancer, neuroendocrine tumors, and I understand some the concerns that go with a rare disorder.
Is your dad seeing a oncologist who specializes in this type of cancer?
Here is some information about this disorder, https://www.cancer.gov/types/thymoma/patient/thymoma-treatment-pdq.
You certainly have my prayers!
Replies to "Hello @gailkattouf and welcome to Mayo Connect. I can understand your concern for your dad. I..."
I am not sure anyone around this area (I am in Greenville, SC) is adept in Thymic carcinoma, but we have had a team really be very thoughtful and methodical in their approach to trying to manage the cancer. I believe the care takes into consideration a multitude of factors. I also believe we just do not have much time to explore many other options because my dad’s course has been complex. This tumor seems highly aggressive and invasive. I am having a hard time determining what is debilitating him more the cancer or his most recent hospitalization. It’s both alarming and concerning as we have chemo in 4 days and his performance scale is a 3 at this point and was a 0 just 2 weeks ago. Thank you for getting back to me. My mom and my sisters feel quite overwhelmed. - Gail
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I would also recommend the thymoma page on Facebook. I was able to get a lot of information from others that have or had this rare form of cancer. It's called the Thymoma Support Group.