Managing AI Side Effects
Hi all, and moderators, please move this if it's more appropriate to be part of an existing discussion. Apologies -- it's a bit long.
Just wanted to share something positive about AIs, which I realize is a data point of 1, me. I'm on Anastrozole/Arimidex since Feb. 2024 and I wanted to wait a bit before I posted about how I'm dealing with it (realizing everyone is different) that's been helpful. (I'm 59, stage 0+, double mastectomy, ATM gene.)
1. Return of hot flashes. I'm taking 5mg of melatonin at bedtime and it really seems to help, esp. with nighttime hot flashes. They're still there, but less disruptive. It took a few weeks to notice.
2. Joint pain. I was really alarmed by the arthritis-like feeling I was getting in my hands and feet. As soon as it starts, I start moving. Someone told me "motion is the lotion". I'm pretty active anyway, but this is a good excuse to keep up hobbies that use your hands a lot.
3. Bone loss. I got some ankle weights and a weighted vest. I like the vest better. I try to use a standing desk as much as possible, and luckily, I love weight-bearing activities like hiking.
4. Vaginal dryness/discomfort. Since hyaluronic acid (HA) "personal lubrication" isn't covered by insurance and is a bit spendy, I got thin, cylindrical ice cube trays, add melted coconut oil and a couple of drops of HA. I slice them into chunks and insert every few days at bedtime. (I cleared this with my dr, who I'm sure thinks I'm a nut.)
5. Anxiety. I definitely felt it and periodically still do -- mild panic. But I told myself I would give it time and just see what tomorrow brings while reassuring myself that I was basically OK and could deal with it. I've been able to. We are resilient creatures.
I hope this might help someone. Reading about recurrences keeps me taking my little pill. I feel lucky to have a literal life preserver, and I appreciate this community and the knowledge sharing.
Sincerely,
Kate
Interested in more discussions like this? Go to the Breast Cancer Support Group.
Sorry! 6. Hair loss. My derm okayed using oral minoxidil, tiny amount to start. Seems to have helped texture a bit.
7. Acupuncture. Mayo has an Integrative Medicine program so the acupuncturist has access to my medical records, bills through Mayo, and primarily treats onco patients. It’s been very helpful in managing side effects. I’m on Letrozole and Verzenio (not an AI, but goes with it, and very hard).
Oh, and my oncologist recommended the coconut oil too! ☺️
8. Healthy yoga and pranayama
Love your positive attitude! I needed that boost this morning! Have a wonderful day!
What a beautiful attitude you have - thank you! In the past 6 months I've gone from Anastrozole, to Letrozole, to Exemestane. Seems to have been a positive switch. You are so right about the moving - do it whenever and wherever yopu can when you start to feel stiff. And I LOVE thinking about my nightly pill as my "little life preserver". THANK YOU!
On AI since last April - found acupuncture was very helpful for painful knees. In California Medi-Cal coverage for acupuncture for cancer patients was scheduled to be part of a budget cut. May be on the chopping block in the future but for now it is still covered. There was significant pushback from healthcare providers, advocates, and patients who emphasized the importance of acupuncture as a complementary therapy. They argued that acupuncture provides valuable relief for chronic pain and other conditions, potentially reducing reliance on medication. Testimony for the value of acupuncture!!!!
Does insurance cover the acupuncture
Not all insurance plans cover acupuncture -- you'll want to check with your provider.
I’m at the end of my rope so this was good to read this morning. 42yo, ER positive, Letrozole and Zoladex since Feb 25. The pain is WILD.