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Everyone with Peripheral Neuropathy

Neuropathy | Last Active: 5 hours ago | Replies (53)

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@artemis1886

My husband is in cybersecurity for department of defense. He could look at setting us up some kind of website. For example what triggers your neuropathy and what helps. We would have to be careful of so called spammers that claim to have neuropathy that don’t. That is a problem with the Facebook neuropathy page. We could somehow come up with the money to get the domain registered with federal domain registry. Then the website would be legitimate. According to my husband the cost of registering the domain isn’t really that expensive we could have to come up we a name. I wonder if Dr Anne Oaklander has looked into that? She is a research neurologist for neuropathy. They have a data base of people’s nerves for research purposes. People from different countries can access the data base for research purposes. That have small fiber neuropathy.

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Replies to "My husband is in cybersecurity for department of defense. He could look at setting us up..."

Setting up the website is not the problem. Maintaining and monitoring is a big expense and not sure it's worth it from my experience with setting up and maintaining websites. There are many different reputable neuropathy websites but it can be a challenge to find information and sort through it. Here are the ones I've found and used:

-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/patient-support/nonprofits-support-groups
-- Neuropathy Action Foundation: http://www.neuropathyaction.org/index.htm
-- Hereditary Neuropathy Foundation: https://www.hnf-cure.org/