← Return to Screaming when regaining consciousness after seizure

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Thank you everyone. I've had epilepsy since childhood back when there was still a stigma to it. Thankfully school was fine, in fact my classmates were quite protective of me so I was never bullied because of it. There was a boy in my neighbourhood tho who started my waryness about telling people. If he heard me saying I'd had a 'funny turn' he'd start laughing at me but was the only one who ever did back then as far as I remember. As I got older it became well managed to the point where I asked if I still actually had it, sadly I do but I carried on living my life & didn't let it define me, as we say these days. I could go years without having any big ones so I just didn't mention it to people unless I needed to. Unfortunately a couple of people I told then didn't speak to me again afterwards. Their problem not mine I know but it hurt & made me feel embarrassed. That was about 30 years ago now but it left it's mark. Years later I still only talk about it when I have to despite having more positive reactions than negative throughout my life 🤷‍♀️

It's good to know that I'm not the only one that screams, thank you very much for sharing your experiences! I will be getting a medic alert bracelet & maybe also something recognisable for my phone.

I've decided not to let it stop me travelling, the only thing I will give up is going to musicals at the theatre. Concerts are a definite no go as the flashing & strobe lights etc are a trigger for me though.

Thank you again everyone 💜

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Replies to "Thank you everyone. I've had epilepsy since childhood back when there was still a stigma to..."

Flashing lights are a big issue for me. I've gone to a couple of concerts only because my family and friends wanted to go and I didn't "that guy" forcing them not to go. I have a quick exit plan and someone designated to get me out immediately if needed, wear extremely dark sunglasses, sit down, turn my head and cover my face whenever lights start.

I am friends with members of a popular 70's group, they convinced me to go. They said, "we're a rock band, we've seen it all", "you won't be the first person flipping out at one of our concerts".

I've left the room during TV shows, avoid theaters and don't think going to the opera or Broadway play is a good idea for me.