Any experience with a muscle scraper (Myofascial Release, Gua Sha)?

No, I have not. When the Mayo Clinic told me I was out of options. They would never tell me why, but it is neuropathy. I’m sure.

Where do I get this please? Waiting for my cervical spine MRI, I have pain in my neck, shoulders upper back, back of my head, left cheek, ear, and left eye. Gabapentin doesn't help or Tylenol. Please help me.
Thanks
Cindi

You can find out more information on their website here - https://sidekicktool.com/. I think they are also available on Amazon.com. I would discuss it with your doctor or a naturopathic doctor first to get specific recommendations based on your symptoms.

I am glad to find this post. After a seeing a 4th neurologist, I was diagnosed with idiopathic SFN. I have this burning feeling all over my body. My hands and feet get cold in the evening. But the burning feeling is still there. While family and friends are sympathetic, they can’t relate. How do you cope? It is really frustrating.

Hello @ksista, Welcome to Connect. That is a great question that a lot of us have either asked or thought about - how do we cope? One thing that has helped me and I'm sure many others is to learn as much as you can about your condition, the symptoms and available treatments that may provide relief. It can be overwhelming and you really need to advocate for yourself. A good place to learn more is the Foundation for Peripheral Neuropathy. Here is a good starting point:
-- Living Well with Neuropathy: https://www.foundationforpn.org/living-well/

You are not alone with your symptoms and I think it helps to read what others have shared. Here is a search of Connect for "cold hands and feet" - https://connect.mayoclinic.org/search/?search=cold+hands+and+feet. There are also quite a few comments on burning feeling all over the body - https://connect.mayoclinic.org/search/?search=burning+feeling+all+over.

Has your neurologist suggested trying any treatments?

I went to an acupuncturist who did muscle scraping with an ox bone. I did not think it helped

@daj3333 Myofascial release works because of a shearing action on the fascia and the therapist has to hold the tension and wait for the tissue to release. If a force is too strong or not creating the easy shearing tension, it may not help much. You can find mfr therapists at mfrtherapists. Com

What I had done was not mfr. When you say mfr works, does it work for nerve pain or for other conditions such as muscle or other tissue tightness?

@daj3333 MFR releases tight muscle and fascia which is connective tissue. That can put restrictions on muscles and joints and nerves that travel through small spaces. MFR can get the body better aligned which may reduce nerve pain if that pain is caused by compression, and if MFR can loosen that tissue. If pain is due to actual nerve damage, MFR may not help. There may be multiple areas that generate pain in a nerve and it may not be possible to tell if some or all areas are generating pain. You may not know unless you try it. My personal experience is treating Thoracic Outlet Syndrome (TOS) which is a compression syndrome. Also, I have had surgical scar tissue tightness released with MFR. I get better body alignment of my spine and pelvis with MFR.

Here is a discussion where you can learn more:

Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Thank you for the information. I have ideopathic SFN which I believe was caused by the Shingrix vaccine so not sure how helpful MFR would be for me but I may give it a try.