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Relief from Radiation Fibrosis Syndrome

Head & Neck Cancer | Last Active: 4 hours ago | Replies (29)

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@niml

I have also difficulty swallowing. I am exactly one year after my surgery right now and still have my feeding tube. I am currently doing some more speech therapy to get my tongue or what's left of it to work properly and help me swallow. Currently the only thing I can swallow is liquids and it's about 5 swallows and the rest won't go down. I did have a swallow study done it helped a little bit. My result is most likely an upper GI in the near future to take a closer look to my esophagus it most likely took a beating also with the radiation. But do look into speech therapy if you not already have done so. It does help.

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Replies to "I have also difficulty swallowing. I am exactly one year after my surgery right now and..."

Thank you @niml
I do have a speech therapist and she helps a great deal. I also requested to see an oral surgeon to see whT he can do for my tongue if anything.
Swallowing is very difficult but I push like crazy. I can have chunky soups and smoothies. That took a year!!
I also have Lymphedema which has swelling in the throat.
Weekly massage helps this.
What a looooong journey this is.
I wish you all the best and please continue to update the group with your progress.