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allisonsnow (@allisonsnow)

Anyone out there with Thymoma/Thymic Carcinoma

Cancer | Last Active: May 26, 2019 | Replies (112)

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@kanaazpereira

Hello @allisonsnow,

It is humbling to read your story about your struggles with this type of cancer!
In the past, Connect member @sngerson did post briefly about thymic carcinoma, and I hope will return to join this conversation; you can read the discussion here: http://mayocl.in/2jnePir

@allisonsnow, have you considered enrolling in any clinical trial or research studies? Here’s a list of all ongoing National Institute of Health (NIH) clinical trials for your reference: http://bit.ly/2iNuW7O

Do keep us updated about your tests, and we wish you the very best.

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Replies to "Hello @allisonsnow, It is humbling to read your story about your struggles with this type of..."

Am I being naïve to think they would try to assign me a Dr. that might have a clue as to what Thymoma even is. On my last visit he was reading my chart on his way into the room and started to read it aloud !! I didn’t need to hear it … I lived it! I was frustrated immediately and the visit went downhill from there what reaction can I expect if for my next appt. I tell them I NEED a different Dr. There was no feeling of trust for this Dr. advise and that is so necessary for everyone ! with their Dr.!!!!! If it were me(as the dr. ) I would jump at the chance to learn hands on about a rare cancer! and study as much as I could about it to help my patient ! Can I just ask my Dr. to put my case before the tumor board if I have gotten conflicting information? Thanks for letting me vent a little and any advice I can get will be appreciated !!!!! Erin

Hi Allison,
I’m so sorry to hear about your latest encounter. I’m sending you a private message.