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Polymyalgia Rheumatica (PMR) | Last Active: 3 days ago | Replies (15)

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@mimi1204

I am to bring down now, like you I also feel like I have a very mild case. Just was wondering if you can elaborate a little bit on your journey with PMR?
I started prednisone at 4 mg in dec 2024, and it took away my pain completely, which is why I believe my case was a mild one.
I have begun my taper gradually dropping 1 mg every few weeks. I am now at 2 mg with very, very mild symptoms and some days none at all.
I’m anxious to get off of it completely. I just was curious how your taper went and how long it took you to end prednisone. Any feedback would be welcome and thank you.

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Replies to "I am to bring down now, like you I also feel like I have a very..."

I started at 10 mg. because that is what my doc recommended when I told him my symptoms. I only hurt while in bed! As soon as I got up. I was pain-free! It took about a year to taper off of it and I had one flare when I caught COVID. Then I took 2 mg. and tapered off in a few weeks.
Occasionally I do feel shoulder pain in my deltoids while in bed, which may be associated with using 5# weights in my exercise classes. It seems much better since I switched to 4# weights. Not sure if I would call it a flare up or not. I hope this helps.