← Return to 13-year-old daughter with refractory epilepsy
Discussion13-year-old daughter with refractory epilepsy
Epilepsy & Seizures | Last Active: Jun 21 9:48am | Replies (20)Comment receiving replies
Replies to "@ebrown78 It's so funny to hear you say the words "mystery" because I hear that every..."
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@dannoyes Thank you for your kind words and advice! We have not been to Mayo yet. We are really considering it because our daughter has been refractory to medication and has had such a strange course. When she was 7, she was diagnosed with focal epilepsy with secondary generalization. She went into status 3 time in the beginning and had so many seizures. They stopped completely after 8 months, and now they’re back 6 years later. All genetic testing has been negative as is her MRI. They say she has generalized epilepsy now.