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How do I know when I can get off my feeding tube?

Head & Neck Cancer | Last Active: Jun 11 7:51am | Replies (26)

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@johnbonani

jg, I agree with your ENT I'm approaching one year post and only recently have things gotten noticeably better. A word about the mucus build up. For me, this was one of the worst side effects of all of them. I was losing my mind with this and the constant feeling of hacking and fear of choking. Doctors prescribed many meds and nothing worked. But eventually it did indeed clear up and now is a distant memory.

A final tip regarding getting off the tube. I had been using Kate Farms formula for my entire time on the tube. When it was removed I ordered the shake version of the Kate Farms. Similar to the tube version only much better tasting. I ordered it by the case and would drink it to supplement my limited regular eating. I did this for four months post tube before I finally cut way back and could introduce a few other foods. Oh and once again I feel MUCH better now! Time heals all...well most 🙂 Hang in there

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Replies to "jg, I agree with your ENT I'm approaching one year post and only recently have things..."

Hey John,
Does the shake version of the formula taste better than Ensure. Because I could be using Ensure but after a while and maybe due to chemo, it just tasted awful to me. I guess that is the key. Just find a nutritional supplement drink that won't make me sick and introduce more and more soft foods.
Thanks for sharing your experiences.
Al

Great to hear you are doing better. I know it was a tough hill to climb. 👍