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How do I know when I can get off my feeding tube?

Head & Neck Cancer | Last Active: Jun 11 7:51am | Replies (26)

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@mojo244

I was in the same boat and one day I just made my mind up that I was going to start eating.
Oatmeal was my only food 3 X day for several months along with protein shakes and Greek yogurt.
Once I was ingesting food for a few weeks I requested to have my feeding tube removed and while they did that the gastrointestinal doctor did a Esophageal dilation and that seemed to help.
After several months I began eating meat and potatoes but I had to have allot of gravy over everything!
None of the meds or xylimelts worked for my dry mouth. I found that the best thing was; hot water mouth and throat rinse first thing in morning and throughout the day followed by brushing my teeth with toothpaste followed by a brushing with prescription fluoride paste and Sensodyne paste.
I need an enormous amount of liquid with my meals and still have difficulty swallowing food and I’m 8 1/2 years post treatments.
Hang in there and fight the good fight!

MOJO

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Replies to "I was in the same boat and one day I just made my mind up that..."

Thanks Mojo for sharing your experiences. I hop things are much better for you now.
Al