2 weeks after reclast infusion, jaw hurts and feel strange. Scared

If your DEXA scores are bad, maybe you should talk with your doctor about doing a bone builder like Tymlos, Forteo or Evenity. You can tell insurance that you "failed" Reclast with bad side effects. More Reclast will probably interfere with the effectiveness of bone builders, according to my docs.

In the meantime, maybe see your dentist to see what is going on. Pain does not always mean damage in my experience. Hope it eases up!

ps I chose Tymlos because the dose is adjustable on the injection pen, so I could ramp the dose up as my body got used to it.

So disheartening when the "helping, hurts". Finding the right treatment/ medication is a journey all of its own.
I would inform your doctor of these symptoms.
Best wishes for a positive outcome.

Thank you for taking the time to respond.

I am hoping that it is just some all over residual side effects I am having like headaches and the nausea has finally subsided.
If not I will discuss further with Dr.

Stay well and safe

I am doing very well on Reclast after 2 months. But, I also have an active exercise program, stress management training, and weight management. I am having a series of old crowns removed for new ones. My dentist knows that I am on Reclast. I am a prior fosamax user and did not like the weekly pill. That is all I know as a 74 yrs. old Caucasian.

Hi, I realize that I'm commenting almost 2 yrs after your post, but I just joined this group. I had my Reclast infusion 3 months ago and I have been suffering with jaw pain for about a month now. I have had panoramic x-rays done of my mouth & jaw and everything looks normal. But it certainly doesn't feel normal! Did your jaw pain eventually go away? How long did it take, if you don't mind me asking?

Following!

Hi, I did not ever take Reclast, but I have been taking Repatha

So sorry to hear about all your medical issues.
I’ve been on Reclast for the last 4 or 5 years, did not have any issues to speak of. I have always had dental issues, 4 times a year with dentist and periodontist. Now I see the Reclast side affects in my mouth and maybe with my bones.
I need to have a molar pulled, and no dentist or surgeon will touch me because of Reclast.
I need to have a root canal from a specialist, and then go to my regular dentist to file it down. No teeth can be pulled at this point. The cost of this procedure is very pricey.
Unfortunately the Reclast damage has been done, no turning back

Yes! It’s scary and I experienced side effects. After I had the side effects only then did my infusion endocrinology team step in. If they didn’t prepare you for your infusion, they did you a disservice (and I am at a great place) so they started me on TYMLOS daily infusions. They also didn’t prepare me for that! After making a lot of complaints and calling the manufacturer, I found out what the deal was. The RECLAST does one job and the TYMLOS does another. And you need some help to get through them both in a way that gets you to a place where you’re not experiencing any side effects. So I will do daily injections of TYMLOS, then do Daily injections of the RECLAST. Then go back for two annual RECLAST and then I’m done for life. The way they should have approached the RECLAST was to have told me to take Tylenol and flush water before the infusion and they should have put me on a longer infusion time which is what they will do when I return. The TYMLOS also gave me problems for three months but by then I got some support. So instead of taking the eight units, I start with two units and then titrate up two units every week that help diminish side effects, which were things like headache, headaches fatigue and nausea. How I figure it is this way — I have been on several yucky medicines. And when my body needs the medicine and needs to attack a problem my immune system ramps up for an inflammatory reaction. So the medicine is needed. And with all these side effects, they don’t need to ram it down our throats. The whole process should be slowed down and there should be more guidance given. However, you have to remember that over 90% of people do not have these severe problems. With the RECLAST up to 10% first timers have the kind of side effects you’re explaining and when they return less than .01 percent have side effects again. I want to tell you after two years of doing this. My numbers are looking awesome and my side effects are zero. And since my bones fell apart in surgery being paper, thin in my cervical spine when the Dex is told me that I was good to go. I’d rather be on the yucky medicine and have stronger bones in a few years. I am 68. Your compromised position to begin with is part of your problem you will need to work with your doctor and a team to help support you through the yucky part and get to the part where you’re just normal again. When I saw my numbers, I am very glad that I stayed on the medicines and didn’t switch to other bone medications which have issues. For example, with some of them, you can’t have dental work and so I was very lucky I was on the medication’s. I was on because my wisdom teeth broke, and I needed dental surgery and I could have it with no thought to the medication. Bones in our body turned out to not all be equal. And women who are older have fragile bones after menopause. I am now doing more exercise. I take bioidentical hormone replacement, which is topical because I have family history of ovarian and breast cancer, I eat right and take the bone medicines.. It’ll be sad if you didn’t take the bone medicines when you had the opportunity and get the support you need and then end up where you need a surgery later on and they tell you “I’m sorry you can’t have it because your bones are too thin. “This is the conversation I had with my surgeon yesterday. I will be having more joint surgeries in my future, and I want to be sure that I don’t run into the same circumstance. There was no way to foreshadow that my C5 was gonna fall apart in their hand when they opened me up With annual DEXA and all kinds of things there was nothing to tell them in advance. Some of my bones are in great condition others not. There is no way to tell sometimes for some people so I will continue to take my meds being informed and demanding support. Like I said everything is great right now and I’m glad I stayed with it. I hope you will talk to your doctors and stay with it too.