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How do I know when I can get off my feeding tube?

Head & Neck Cancer | Last Active: Jun 11 7:51am | Replies (26)

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@jg99t9

Thanks John,
I will try to introduce some more foods and I will try the Xylimelts. My ENT tells me that a lot of the time it takes a minimum of 1 year before you feel comfortable enough to eat substantially.
Thanks again,
Al

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Replies to "Thanks John, I will try to introduce some more foods and I will try the Xylimelts...."

jg, I agree with your ENT I'm approaching one year post and only recently have things gotten noticeably better. A word about the mucus build up. For me, this was one of the worst side effects of all of them. I was losing my mind with this and the constant feeling of hacking and fear of choking. Doctors prescribed many meds and nothing worked. But eventually it did indeed clear up and now is a distant memory.

A final tip regarding getting off the tube. I had been using Kate Farms formula for my entire time on the tube. When it was removed I ordered the shake version of the Kate Farms. Similar to the tube version only much better tasting. I ordered it by the case and would drink it to supplement my limited regular eating. I did this for four months post tube before I finally cut way back and could introduce a few other foods. Oh and once again I feel MUCH better now! Time heals all...well most 🙂 Hang in there