Gleason 6 Decipher 0.64. Photon, proton, AS, TULSA?

OK< thanks.

When I got my Decipher information I was told came back low risk. I was not given a number.

I see most posters use a number. Can I asked those who are experienced with the numbers of what is considered low risk, intermediate, and high risk. I trust my Mayo R/Os who passed on my diagnosis when they received it from Decipher but for me to understand so many posters that use numbers instead of words would really help me.

https://decipherbio.com/decipher-prostate/physicians/rp-test-report-overview/

@pdcar4756
First thank you very much. Went to graph and now can understand when numbers are used versus words. Not sure why my Mayo R/Os used wording versus numbers but maybe to make it simple for me to understand.

I promote second opinions, Decipher test, PSMA, etc. When I was first diagnosed by Gleason Score it was at intermediate risk 3+4=7. Treatment recommendation was radiation and hormone.

Mayo R/O suggested Decipher and bone scan. I had no idea what those were back then as was not on MCC. This was back in January 2023. When the Decipher came back low risk Mayo R/O changed my treatment to radiation only.

I did a second opinion at UFHTPI which concurred with diagnosis and treatments but wanted to do a PSMA test in addition to other test already done. I did the PSMA which was also negative.

The UFHPTI R/O did another test where he put a contrast via uretha during a CT to see back of prostate. Not heard of that one and maybe specific to this R/O.

I’m sorry. I don’t know why you want to do anything? A low Decipher score and detecting cancer which is highly unlikely to metastasize, why not just do Active Surveillance? Any treatment, is going to have serious side effects. Are you willing to risk those, some life-changing, unless it is necessary. Maybe elsewhere you provided add’l information that clarifies why treat. But me, I’d be glad to know I would keep watching unless and until something else shows up. My opinion, obviously.

Thanks for the feedback. I have been Active Surveillance for 11 months. PSA has risen from 5.1 to 5.7 in a year. Am supposed to do new biopsy this summer. My urologist only does transrectal, but all my research says transperoneal is better/safer. I have an appointment with him next week to discuss

Transperineal IS better and safer snd can access more areas of the gland.
If your URO doesn’t do it, please find someone else who does; don’t let him talk you into doing something you know is inferior just because it’s what THEY are comfortable with.