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Complex Regional Pain Syndrome

Chronic Pain | Last Active: 5 days ago | Replies (32)

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@geronimo87

Your story sounds a lot like mine. I had a distal radius fracture and then an ORIF with a bad outcome and all of the classic CRPS symptoms. After not being able to get additional imaging, I got a 2nd and then a 3rd opinion from surgeons from other clinics. Additional problems were identified via imaging and I had 2 more surgeries. I am well on my way to the resolution of my CRPS now. Had I stayed under the care of the first surgeon, I would be considered permanently disabled. CRPS is a diagnosis for a constellation of symptoms that many of us share and for which they can't find a cause or determine a resolution. But there is always an underlying reason and your chances of having that reason identified go up considerably if you seek out additional medical opinions. If you'd like to chat further, you're welcome to DM me. Whatever you do, don't give up!

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Replies to "Your story sounds a lot like mine. I had a distal radius fracture and then an..."

Hi Geronimo,
Thank you so much for your reply — I can’t believe how alike our stories are. It's really encouraged me to seek a second opinion. I actually tried to send you a direct message but couldn’t figure out how to do it.

I wanted to ask: do you think you have CRPS, or were your symptoms more related to the initial fracture and the surgery? How are you feeling now?

I worry that doctors can be quick to give a diagnosis without taking the time to thoroughly investigate things. I really appreciate hearing your experience. Looking forward to your reply.