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72 hours out from robotic prostate surgery ..

Prostate Cancer | Last Active: 3 hours ago | Replies (10)

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@kmc1372

I'm sorry to hear you had to go through this too. I'm 11 weeks out from my RARP, which I had on March 20th of this year, and still dealing with the pain. I'm 55 with no family history of any cancers and WAS very fit and active, mainly weight-lifting and bicycling. After the surgery, I was on oxy for about 5 days, then switched to OTC Ibuprofen. Just remember, everyone is different and how they react to the surgery varies greatly. Sometimes it seems that I have issues that no one else seems to have, but this forum has helped tremendously in my recovery. I had my appetite back a few hours after the surgery. One of the worst parts for me was the catheter, which I had removed 8 days later. I thought once it was out, I would be home free, but that is no where near where I am. I am fortunate in that I maintained my continence. I believe the pelvic floor exercises helped with this. I wore diapers for about 2 months, then switched to pads, which I still wear. I go through about 2 a day. The one thing I have not seen on here is the pain I still experience. I have really bad rectal pain, especially when I stand up to urinate. If I sit down, the pain is a lot less, but still there. This pain never seems to go away even if I take OTC meds. Most of the time I describe the pain as sitting on a golf ball that constantly pushes up into the perineum or rectum. Because of this pain, I can't ride a bike yet and weight-lifting has been reduced to light weights. Heavier weights, which I lifted prior to surgery, still cause leakage. The worst thing of all is that I am impotent. I take 5 mg. of Cialis daily, but this has not helped. I increased the dosage to 20 mg a few times to see if it helped, but did nothing. Prior to surgery I had ED for which I took 10 mg of Cialis as needed, increasing to 20 mg if the 10 mg did not work, per my Dr.'s recommendation. This has been nothing short of a nightmare. Prior to surgery, my PSA was 6.7 and a biopsy showed 7 of 12 cores positive for cancer, Gleason 3+4=7 on 4 of them and 1 with Gleason 4+3=7, the rest at 3+3=6. Having to do it all over again, I think I would have taken my chances with active surveillance, even if against my Dr's recommendation and knowing the negative outcome. I've been married for 26 years and still very young, yet at this point it looks like my sex life is gone. This is just my experience. Hopefully others will chime in with their experiences. Hang in there. I wish you all the best going forward.

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Replies to "I'm sorry to hear you had to go through this too. I'm 11 weeks out from..."

50 years old. I am almost 3 weeks out from surgery. I also have the “sitting on a golf ball” pain. Also hurts to laugh sometimes. Not much pain otherwise. Also have ED and minor incontinence.

It definitely is possible to get an erection again. There are multiple different things that can be used. Were they able to do nerve sparing surgery? You can take some people a few months or longer before they can get an erection if that was successful.

Have you used a penis pump? It’s really good to use to make sure the tissue stays active because it can deteriorate if not used. My medical provider supplied me with one after I had my surgery.

You can get bimix or Trimix, which you inject into the side of your penis with a very small thin needle. It can give you an erection with great results.

The following link gives you a lot of first hand information on using Trimix.
https://connect.mayoclinic.org/discussion/my-trimix-experience/
Since you had one 4+3 core, you are a 4+3 7. The other Gleason numbers are not relevant. Definitely not an active surveillance Gleason score.

Have you seen at least two different doctors about the problem you’re having?. You should be contacting a doctor at a center of excellence and/or a Genito Urinary Oncologist. I must admit I never heard of the problem you’re having but it may be Resolvable, Possibly the doctor you were going to now as unable to do that, but another doctor will know what to do.