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How do I know when I can get off my feeding tube?

Head & Neck Cancer | Last Active: Jun 11 7:51am | Replies (26)

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@lollie

I agree with everyone that it takes time to be comfortable with your caloric intake before you can fathom not having your feeding tube. The transition can take months. I began focusing on introducing eating by mouth a month post treatment. I started with pureed green vegetables, Cream of Wheat with plenty of half& half, water, and morning coffee (again- plenty of half&half!) I graduated to soups, steamed veggies, fresh pasta with olive oil & veggies, fish, and blueberry pancakes with real maple syrup! Some things just didn't work: yogurt was too "coating-ish", most meats (teensy bites) tasted and felt like sawdust, and breads were like a dough ball in my throat. I still always have water around when eating (and always!). Sugar tastes weird and not worth the empty calories. I also supplement with high calorie, and now high protein Boost. I had my feeding tube removed after this 4-5 month transition. It's been a year since removal, and I've slowly gained back 8 of 30 lbs. lost. I can happily eat fresh salads, vegetables, and my husbands famous smoked BBQ ribs! Exercise also helps bring your appetite back. Perseverance is the key- just keep trying stuff!

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Replies to "I agree with everyone that it takes time to be comfortable with your caloric intake before..."

Thanks Lollie,
I feel like a baby. Seems like a lot of people have had their tube taken out between the 3 to 5 month period, and here I still have it at 7 plus. I guess I need to motivate myself more.
Thanks again for the advice,
Al