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8.530 TSH and 2.8 T3 free, and 1.2 T4 free
Thyroid Cancer | Last Active: Jun 14 6:46am | Replies (22)Comment receiving replies
Hi All - I have been following this group since before having a partial lobectomy last August. Everyone’s input is wonderful. I opted to have half removed with the hopes of the other half producing what my body needed. It didn’t and I have been on levothyroxine since. Of course the numbers of have clinically “in the normal range.” All I can say is I have felt awful ever since. My body hurts to the bone, I am exhausted all the time, my hair is brittle and falling out, weight gain. These are all things I thought happened before someone was treated for hypothyroidism. I have another follow up appointment with the endocrinologist this week and have a list of questions but am wondering if anyone has some suggestions for me? I felt I made the right decision at the time but in hindsight I wish I didn’t have it removed and just continued to monitor the nodule. I just want to move forward. Take care!
Replies to "Hi All - I have been following this group since before having a partial lobectomy last..."
How large was the nodule they removed?
the "clinical range" is not agreed upon. My numbers appear "normal" to some but some others contend that my T4 is lower than optimal which would cause higher TSH. And I feel like you do.
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I had a lobectomy and I was having a lot of side effects on the medication….definitely change the medication you take! I tried several medications (Synthroid, Tirosint gel, Tirosint Liquid and Levoxyl) and several dosages…..it’s not just the TSH and T4 numbers it is how you feel that makes the medication good. My first Endocrinologist wanted me to wait 6 weeks before changing dosages even when I was having EXTREME reactions….. she also kept increasing the dose thinking the issue was too low of a dose! I changed Endocrinologists and now have a better system. The Endocrinologist at the cancer hospital helped to get a better start by changing medicines when side effects were too bad and changing the dosage to try and match my numbers from before I had surgery (I did not have a thyroid issues….just a big nodule which turned out to be cancer). The doctor I have outside the cancer hospital is also very good at listening to the side effects and making changes. Waiting 6 weeks is for the blood to show a change, however my blood work was always within the normal range (sometimes high end and low end). When my medication is changed I usually feel a difference (better or worse) shortly after. You should not feel terrible with side effects and waiting 6 weeks for blood work when symptoms are so bad is not right. I had an extreme reactions on Tirosint (I thought I was having a stroke!) I stopped taking it and all the side effects improved…..until the issues of hypothyroid started again so I had to find a different medication. Don’t give up, but don’t just let your blood test numbers determine if the medication is right for you….the side effects (muscle spasms, itching, burning mouth, depression, headaches, extreme fatigue, insomnia, hair loss, etc) have to be recognized as part of the issues. As one doctor told me, “There are plenty of options for medication, so why suffer?” Good luck!