Connect
← Return to 13-year-old daughter with refractory epilepsy
Discussion
13-year-old daughter with refractory epilepsy
Epilepsy & Seizures | Last Active: Jun 21 9:48am | Replies (20)Comment receiving replies
@ebrown78, I hope you don't mind another question - I'm just trying to understand your daughter's situation better to see if I might have any helpful insights.
Could you share what age your daughter was when this new onset of seizures began? Also, has she started her menstrual cycle yet?
I'm asking because hormonal changes can sometimes trigger epilepsy onset, especially in young women. Some experience their first seizures during puberty when hormone levels fluctuate significantly - this was actually my experience as well.
The Epilepsy Foundation has an article about the connection between hormones and epilepsy: https://epilepsyfoundation.org.au/managing-epilepsy/women-and-epilepsy/epilepsy-and-hormones/
Has your daughter's neurologist discussed whether hormonal changes might be contributing to the changes in her seizure pattern?
Chris
Replies to "@ebrown78, I hope you don't mind another question - I'm just trying to understand your daughter's..."
Connect
@santosha I don’t mind at all and appreciate your advice! She initially started in 2018 and had her last seizure on 2/14/19. About two and a half years later she started with absence seizures around age 11. She got her period in 12/23 and around that time started with myoclonic jerks, which seemed worse when she was menstruating. On 12/25/24, she had a TC. After that her myoclonics increased through March of this year and then completely stopped by the end of March. On April 4 she had another TC. Then she had one TC a week in April. In May she had 20 TCs and continues in June. She had a EMU stay at the end of May where she had a dose of steroids and added a new med. She is taking progesterone as well. She has had negative MRI and WGS.