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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 6 days ago | Replies (711)
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@bonnieshaffer

Hi everyone,

I'm Bonnie and I have MDS/MPN with Myelofibrosis 3.

I live in Southern Oregon and am headed to Portland (other end of state) for a Bone Marrow Transplant. I will be gone 4 months. I live alone with an elderly dog and getting ready for this procedure has nearly knocked me out. I have to find house/dog sitters as well as 24/7 caregivers (I've got 8 who have committed so far). On top of that I'm leaving my 93 year old mother behind and she is constantly in tears about me leaving.

Between having to troubleshoot issues in advance for my 125 year old house and thinking about everything all at once I'm worn out and stressed.

I'm making a list of things to bring to the hospital. I will be there for approximately 25 days according to Dr. Can people chime in with what to bring, pack for the hospital? I know about the extra long chargers for sure and have ordered them. Just looking for advice from those who have been through this.

Thank you so much!

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Replies to "Hi everyone, I'm Bonnie and I have MDS/MPN with Myelofibrosis 3. I live in Southern Oregon..."
Lori, Volunteer Mentor | @loribmt | Jun 8 1:30pm

Hi Bonnie! Looks like you’re about ready for a new adventure, huh? The logistics of being gone for 4 months is really challenging. Moreso in your case with being absent from your dog and your 93 year old mom. Oh gosh, that’s really difficult. Does your mom do FaceTime? That might be helpful in this case. She’s going to need some reassurance so I’m hoping she’ll understand that this transplant is so important for you. Is she in assisted living? If she is, can you speak to one of the coordinators there?

I wish you well with getting everything else lined up. It does sounds like you’re doing a great job so far. It is stressful, I know. But it is also doable and important for your continued health to be able to get this transplant out of the way.
I have several links for you to read through that might help you in fine tuning your list of items to bring. Both for hosptial and off-site stay if you need to recoup as outpatient after your 25 days.
This reply is one I posted a while ago with all my favorite tips. Lots of links imbedded in it:
https://connect.mayoclinic.org/comment/1059221/
Another member recently posted this discussion where others have joined in as well with their tips for what to bring to Mayo…but it can apply to any hospital setting:
https://connect.mayoclinic.org/discussion/what-to-bring/
Don’t hesitate to ask us anything here. There are a lot of us who have been through a BMT and we love to help others along their journey!
Do you have a target date for transplant?

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