Everyone with Peripheral Neuropathy

YES - red wine helps

You might look into Calmare Scrambler treatment. I have read it is effective for chemo induced neuropathy pain in feet. It is not covered by insurance but John Hopkins and a few other places are trained in this treatment mostly in Midwest and east. I hope you find relief

Has no one from the Mayo Clinic performed any 3rd party double blind test to improve PN? Otherwise we are just describing symptoms without any particular remedy that actually works. Does all the funding go to cancer research & none for PN?

Yes! I definitely believe stress is a trigger and also adds additional pain. When I've had a stressful couple days, those nights are the worst. I'm contemplating having my doctor prescribe a low does anti depressent type drug to see if it helps. I figure you won't know what helps you until you try it. I have intense burning in my lower legs and feet only at night. I have soft flat pliable ice bags that lay on top of my covers and putting my feet and legs near them really helps. The only thing I have found that stops the pain is oxycodone. Can't take that often though! I am going to try and go to a neuropathy clinic next because medicare pays for it. It's a 3x a week that a lot of people say works. Good luck to you.

Sorry to learn that you are in so much pain. I have numbness and tngling in my feet and sometimes hands but it is the feeling of high anxiety--sometimes marked by a racing heart beat--that has me so upset. Please keep this site informed of your experience at the neuropathy clinic. I am at physical therapy and the massages are quite helpful in terms of stress reduction and comfort.

I was born with Spina Bifida, and deterioration over last 10 years has left me with a super public catheter, bowel incontinence and now suffer with extreme neuropathy whichbI believe was caused by a fall which further caused shingles hence, neuropathy. Nortriptyline 10mg doesn't help. I am wheelchair chair user and only lie in bed or sit as walking is impossible. Waiting for pain clinic to see if they can assist? Thnx

In today's New York Post an article described a vaccine for breast cancer--on the horizon. The breast cancer group has a powerful lobby so research is going their way. Not so much for PN. Our voices and concerns seem to take a backseat to other areas of medical research.

Absolutely no help from medical people with neuropathy. Much known now about heart and cancer but no apparent research for PN. It is so impossible to get relief. I have no answers either

Actually there is a lot of research going on but it's definitely a slow process for those of us with neuropathy. Neuropathy research sponsored by the Foundation for Peripheral Neuropathy:
-- Clinical Research Training Scholarship: https://www.foundationforpn.org/clinical-research-training-scholarship/
-- Current Research: https://www.foundationforpn.org/current-research/
-- Grant & Funded Research: https://www.foundationforpn.org/grant-funded-research/
-- IMAGiNE Study: https://www.foundationforpn.org/imagine-study/
-- Research Registry for Patients: https://www.foundationforpn.org/research-registry/
-- Research Registry for Researchers: https://www.foundationforpn.org/research-registry-for-researchers/

I recently tried a new supplement called Arialief (google it) and find it has helped in many ways. Check it out