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Anyone dealing with brain cancer
Brain Tumor | Last Active: 2 days ago | Replies (25)Comment receiving replies
Hello dconway,
I completed the surgery, radiology and chemo at the end of December 2024. After that I had a gamma knife radiation procedure in early February 2025 as opposed to Optune process. The gamma knife procedure is a one-time procedure to specifically target any residual cancer cells as best as possible. My provider had prescribed the Optume but I did not find any evidence for that process which calls for wearing the equipment 18 hours a day for the rest of your life. I also read this device "could" extend your life 3-4 weeks past the regular 12-14 month life expectancy for glioblastoma patients. I'm now on my 5th of 6 months of 5 days per month treatment. I will complete the final 6th months of treatment in July. We shall see after that.
Good luck with your husbands treatments, God bless you all!
Replies to "Hello dconway, I completed the surgery, radiology and chemo at the end of December 2024. After..."
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Hello dconway and @adrian092 ,
I completed my 6 months of 5 days per month of TMZ in July 2024. The oncologist that I was seeing at the time said that I too would have to wear the device on my head daily for extended hours per day. I asked why and he did not have an answer. I refused that treatment of course and found a 2nd opinion. To this day, I never worn that device and never will.
I did have some growth earlier this year, which I was aware that it could happen. It appeared on 2 MRIs I had. However, my last appointment/MRI in the 3rd week of May, showed that the growth shrunk without any additional treatment as my current oncologist had a wait and see attitude. I was told that it was not uncommon for that to happen. It made me and my oncologist very happy.
I do wish you the best moving forward. Remember, the final decision is yours in anything you do for treatment. Take care!