Fyi giving an update pretty much a year later, this is just for others who my have similar symptoms hope it helps someone. I'm not cured at this point but I have gotten some much needed relieve.

I took this all the way to a web Dr visit with mayo who told me it was likely caused by drinking and I should never drink again. And I pretty much had already stopped anyway. However after that diagnosis i stopped drinking completely, however my symptoms only seemed to get worse and i was again frustrated. I did go back to the eye Dr and not so oddly by eyes were back focused on the same spot again.

Not happy with the diagnosis or lack of help it provided or my health i continued to wonder about Gluten. I again stopped eating it - this time during the pandemic. thanks to the pandemic controlling what goes in mouth became more controlled. I eat out all the time so i basically eat what i cook at this point. Vs last time i tried it eating out and assuming what i was eating was GF.

Again instantly changed my digestion. And again i felt my eyes drifting from the same focal point. I know so freaking crazy!!! However this time after a few weeks those symptoms subsided. And my shocks to date are the best they have been in sometime and I still dont eat Gluten by choice. I rarely have shocks or symptoms at all. I still drink but very rare and when i do i have a few glasses of GF wine or something. I lost a little weight like 7 pounds and that was about every ounce of fat i have on me. I have slowly started to exercise but one time after I did 50 pull ups i had a few shocks in the elbows that night so Im trying to get back more slowly.

Ive also noted several other positive things - less confusing or brain fog - sleeping better - Better digestion - aches and pains that Ive had for years are fading or some have left completely - muscle tone returning really fast and all i do is a few pull ups a few times a week and now try not to over do it, hopefully at some point i can exercise more like i want vs what my body allows. But hey I'm nearly 47 and i can do 50 pull ups or more who knows, with a one minute break between sets of 10 doubt too many 18 year old's can do that.

I did go to an arthritis Dr. he took readings of uric acid in my blood and they were borderline high - I also had symptoms of joint pain and that too is mainly gone now but Ive been taking a low does of alopurinol to reduce uric acid. Its not been proven that i have gout like my father but since most all my joint pain stopped after taking it I think its pretty likely. My gout symptoms were very non standard i had no "attack" just joint pain that would move around to typical joints that gout settles in....hands finger's toes heel wrist. I may go off it again and see what happens with my joint pain but for now i dont want to change anything.

Anyway its not been a year yet - so I'm still hopeful that my body continues to heal. I may post again who knows. Before going gluten free i was one to make fun of the diet. Now sadly - I'm a firm believer that Gluten is very bad for many people who are still eating it. I was tested for celiac and it came back negative and i was tested while eating gluten. So even if you get tested for celiac dont assume you can eat gluten without doing damage. Also keep in mind I went to lots of Dr's all the way to the mayo and not one ever told me to cut out gluten. My sis always says it messed her up and i blew her off as crazy. And i think my brother is affected too but he refuses to care enough about his body to even try cutting it out. But since he goes number 2 four times a day, i have a feeling he is in denial.....

Oh another major symptom it gives me is inflammation in general but massively in the gut. It took weeks to months for the inflammation in my gut to settle down to normal levels but i would say anyone with IBS should try not eating gluten. Ive never been diagnosed with IBS nor did i consider my digestion to be that abnormal but after going GF i would say the path to healing in my case was my gut so pay attention to your digestion. Mine was a very slow and gradual process and can go unnoticed easily but if i think back to 20 years ago there are major differences.

I would also note that after 40 when i drank vodka (while eating gluten) it would inflame my bowls notably and always thought that strange and if i ate spicy foods the next bm would not be fun. But now i can do both with a healed gut and not really even note my next bm as strange. Also note that if i drank vodka it was always preceded or followed by very thick malty delicious beers overflowing with gluten. Damaging my gut lining and allowing who knows what to get into my blood stream. .

I think i may see ayurvedic Dr. for further advice.... I have a feeling they will be more prone to knowing what i should eat or cut out to get even more improvement. Why i could eat gluten in my 20 and now I cant who knows. Also note that I can eat gluten and I think i would hardly notice - at that is unless i started doing it on a regular basis. I have eaten a few things by mistake or on purpose just to see what affect it would have. (my body has been one big science experiment for the last few years) anyway Im not even sure i have any true symptoms by eating gluten once with a healed gut. But trust me when i eat it every day it chips away at my health till I'm a shell of my former self.....

Anyway best of luck to every one on here and dont give up. Ive been fighting this for 7 years maybe longer and plan to continue my battle - time will tell where it leads it me

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