Pain only on right side of body
Hello! This is uncomfortable for me to do, I’m not usually a forum user.
I have been dealing with chronic pain for around fifteen years, and the pain was originally focused on the right side of my neck. After a few years it spread to the right side of my face and my right wrist/fingers, and has now reached my right lower back, thigh, calf and occasionally the top of my right foot.
I have always wondered about autoimmune disorders (5 out of 7 of my maternal aunts/uncles have an autoimmune disorder), but I tested negative for ANA. I did have shingles on the right side of my face around 20 years ago, had multiple cysts, fibroids and endometriosis resulting in needing a hysterectomy, and very common unexplained rashes.
Thank you for your understanding and time, it is not an easy process to have so much pain with very little understanding or guidance.
Take care!
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No, out of all the drs I’ve seen no one has ever suggested gout, might be something a look into, thanks.
I paid out of pocket to see a vascular surgeon and had vascular scans done due to colour and temperature changes and mottled skin but all the tests and scans came back normal
I don't think gout is responsible for the pain you are experiencing on the right side of your body. It seems like that is nerve-related. However, my gout "flares" have only affected joints on my left side, and now that I have regular gout, it affects my most arthritic joints but seems to create an inflammatory immune response throughout my entire body. It's also hereditary, so if someone in your family has it, it would be something to look at. Good luck!
No one in the family has had gout, my mum also has CRPS but hers is from carpal tunnel syndrome surgery, but it’s limited to one arm and hasn’t spread
I don’t think it’s gout, but probably wouldn’t hurt to test for it.
It’s definitely 100% nerve pain..
I get the burning buzzing pressure, and shoots sharp pains, it starts in the right side of my face and goes all the way down into my foot.
It could be a pinched/impinged nerve in your cervical spine! Most people get that via shoulders into fingers. Some get it to their legs feet from the neck. An EMT nerve specialist might help determine whether it is neuropathy (characterized by local pain, tingling, numbness, and itching) or radiculopathy (which is referred pain) originating from somewhere in the spine. I tend to think it is a radiculopathy in your case. what you are describing does not sound like gout but nerve-originating problems. A good MFR therapist can help you manage this! and also help isolate and further narrow your scope of focus!
I’ve had multiple EMG’s both pre and post C5/6/7 ADCF they still show damage at c6 and c7 without impingement.
Due to the colour and temperature changes in limbs and extreme sensitivities i was diagnosed with CRPS
My neurosurgeon, neurologist and pain management specialist are all agreeing pain medication and movement therapy are my only options as even if I required further surgery there is every possibility my CRPS could spread, my pain specialist did mention ablation but he is sceptical about spreading
I’ve had 2x week long ketamine infusions, multiple nerve blocks, physiotherapy, hydrotherapy, mfr, dry needling and trial of both cervical and lumber spinal cord stimulators
I don't know about CRPS as a label for what ails you but I can tell you that I have damaged nerves emanating from my spine. I had surgery so they were released but they are still damaged. It can take 10 years for nerves to remodel. I am on year 7. I don't have much hope. I have pain on my left side down my leg. At different points. Some tolerable some not. What I found helped is riding my stationary bike for 90 minutes every day (at least 45 minutes) and walking twice a day. Basically, keeping my circulation and metabolism strong and active. Also exhausting myself so I sleep deeper at night. I use topical creams (diclofenec 3% and lidocaine 4% and Sagely Naturals CBD "circulation" deep recovery cream I like a lot. (buy on sale 40 or 50% off). I take a low dose opioid for my lumbar back pain which only works on my tailbone pain. Cortizone injections help once in a while because we've located the exact spot where the nerves were crushed which is where the pain comes from. I don't believe your CPRS would spread if it is because specific nerves (which you just said were damaged) are the reason for your pain. A lot of people use nerve medicines but they never worked for me. I hope you will continue to search and find relief. (I have my artwork and dog to keep me happy during my bouts of intolerable pain.)
Thankyou..
I try and keep as active as possible, although I do also tend to pace myself as if I over do it, I pay for several days
I worked in disabilities prior to my injury so I totally get the use it or lose it.
I’ve put on 25kg over the last 3 years due to medication and limited mobility, I’m currently on a mission to change that, Ive just been put on monjauro and changed my diet to avoid gluten and sugar, started taking a multivitamin and PEA supplements
I’ve also suffered with migraines since my surgery, sometimes I can ease a migraine by wearing my soft collar for an hour or 2, if that doesn’t work I usually take a maxult migraine wafer (Rizatriptan) I don’t know if its coincidental or not but I have noticed when I take a wafer it seems to ease my nerve pain.
I see my pain specialist again next week so I will definitely mention this finding to him
Im surrounded with pets I have my 2 Siamese cats and a British bulldog puppy whom I’d be lost without, I’ve also noticed when I’m struggling with strong pain the cats always try to sit on that area and won’t leave my side
You got it going on! Try the MFR. It seems like the only thing you haven't done. NOTHING fixes damaged nerves at a certain point. They are damaged. But ABLATIANs will silence them permanently or for many years until they can grow back. I don't know if your areas are referred from places which could hold ablatia as a solution. My damage did. They ablated at the facet joints off L 3/4/5 . They must determine the root damage and then create a treatment plan. My suffering always goes to my spine and the nerves emanating from there. Also there are muscle relaxers which work on different pathways so I was switched around and it is amazing the difference it makes. (Baclofen vs. Tzizanidine) I left the other generic muscle relaxers 20 years ago because they made me sleepy (robaxin and flexeril).