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Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: 10 hours ago | Replies (253)

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@hrhwilliam

Hi @la93 Because an Ameloblastoma is very rare, you should definitely enquirer as to the surgeon’s experience with this. This applies to the surgeon who has recommended the fibula free flap as well. The latter operation requires an experienced team to perform yet the timeline given sounds about right. That surgery, horrible as it might sound, often has great results, mine included.
In a nutshell, consult to find experience. This is your life, not the local doctor’s.
Personally I would recommend Mayo as well. However Mayo has trained many surgeons around the world in this procedure so perhaps your local team may be well versed.

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Replies to "Hi @la93 Because an Ameloblastoma is very rare, you should definitely enquirer as to the surgeon’s..."

@hrhwilliam I can see what a great support you are to everyone on this forum, so thank you for your response. May lean into this group as I get closer to treatment. It's a lot, as you know! Part of a club we never asked to be in... I plan to reach out to Mayo Clinic, Dr. Arce. I only worry about the distance to get to my care team if there's any complications later, since I'm in NY. PS I am terrified of this feeding tube. To me that's the most frightening part now. Maybe because that was only just mentioned on my last visit.