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← Return to Diagnosed with Ameloblastoma
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Head & Neck Cancer | Last Active: 6 hours ago | Replies (259)
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I had ameloblastoma in the left maxilla 3 years ago. I went to Mayo Clinic in Rochester and had Drs. Arce and Ettinger perform the surgery. It was 10.5 hours, 1 week in the hospital with feeding tube and 1 week in an apartment with feeding tube. After 2 weeks feeding tube was removed and I was allowed to go home with a CAM boot on my left leg where they harvested the fibula free flap. After 3 years of follow up all is clear and have 2 more years to go. I would highly recommend Mayo Clinic.
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@therock. thank you for your response. I am reaching out to Dr. Arce and the Mayo team for a consultation. Assuming that Mayo can recommend a place for you to stay. I'd be coming from NY. I worry about needing to get back to Minnesota in terms of distance and time if I needed them. But aside from that, willing to travel to get the best care. I do worry that "surgeons do surgery" and will they take a conservative approach if possible? On the other hand, who wants to do a surgery a second time, so maybe the radical surgery is better now.... I'm 65 but active and in great health, still working and travel quite a bit for my job. Hard to know what to do.