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My Body and Mind Declared Fragile. What now?
Chronic Pain | Last Active: Jun 12 10:05am | Replies (30)Comment receiving replies
Hello, Susan. I'm a Susan, too. Nice to meet you. I'm sorry to hear about your struggles. I just turned 58 and gave physical, chronic pain, due to a variety of illnesses, and I was recently diagnosed with Frontotemporal Dementia. My family just put me in an assisted living facility. Most of the people here are much older than me and dealing with similar life problems.
I'd love to give you some great solutions, but I don't think there are any. The support of people in similar circumstances seems to ease the load, but it is still very difficult. I have found the only relief for me, and my depression, is my faith in God. I have to believe in His goodness and that after this short life, there will be something much, much better. When I feel overwhelmed, I love to read the Psalms from the Bible. I try to start my day with prayer and read because I find hope in God is my true strength. He comforts me when my life is just too painful and lonely. I guess this life wasn't meant to be easy, and I'd love to grab some of that energy back from my youth. I miss those days of freedom. I think God does help me get through each day - especially on the days that I just want to quit everything.
I hope you find some comfort in the good that is in your life. I think paying attention to what we focus on helps. If we focus on the negative, we get depression, but if we focus on the good, we find some peace.
I wish the best for you.
Replies to "Hello, Susan. I'm a Susan, too. Nice to meet you. I'm sorry to hear about your..."
Hi Susan - I just wanted to say that your advice for Susan was beautiful and encouraging. My relationship with my Saviour, Jesus Christ, is the only thing that keeps this 71 year old body going. That and volunteering to help in any place I see a need. Helping others gets your mind off your own problems.. I wish you both the hope and joy from knowing the God of the universe is in control of e everything. ❤
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@suesea
First of all, thank you for writing. And your flower the pansy has always been one of my favorites so I was delighted to see that
I am suffering from the traits of frontal temporal dementia, but still have the diagnosis of mild cognitive impairment. I’m sorry to hear that you have FTD and that you are in an assisted living facility. He said your family put you there. How was it chosen the facility? Did you contribute to the decision or did they just do it for you?
I’m wondering because I am looking around myself right now and just trying to be prepared for the future. And I am deciding where I’m going nobody else and I think that’s a blessing for me but just to be told you have to go somewhere without your decision is kind of scary Because I know what I want and I know what I like.
I am a person who reads the Bible. I study it. I go to church every Sunday so I understand what you’re saying and I thank you for your suggestions and the fact that you have been able to share that with me is very very amazing and it helps me it reinforces me to get up and get moving.
No, I just woke up at 10 AM and I still haven’t had breakfast and it’s 1040 now so I guess I better get one. I hope you have the best day that you can and I will speak with you soon. Thank you.