I was diagnosed with CIDP in 2022. Did weekly IVIG of Octagam and was back to almost normal in eight weeks. Stayed on Octagam till January of 2025 when I was switched to Privigen for insurance purposes. Asked my neurologist several months ago about Vyvgart Hytrulo after seeing an ad. Took several weeks to get approved for the prefilled syringe weekly self administered. Two weeks into the new Vyvgart Hytrulo, I started regressing. Had the doctor phone me and was told I needed to hang on and should see progress by the fourth shot. Took my fourth shot yesterday and have regressed severely. To the point I need assistance to walk to the bathroom. Put a call in to my neurologist yesterday and asked for a return call, nothing.
It’s now Saturday morning and can’t sleep. Decided that come Monday morning and if no signs of advancement, I’m going back to IVIG.
There is a nurse with CVS SPECIALY that’s over the Vyvgart and spoke to her in length yesterday. She pulled the file on Vyvgart and read where some patients in testing felt progress in four weeks but full progress is not until the 28 week. Then no more advancement after that.