It took around a month and 3 different hospitals to get a diagnosis. There were numerous blood tests, MRIs and lumbar punctures. I had to transfer to a different hospital at one point because the hospital I was at was unable to do some of the more advanced tests needed for a diagnosis. The doctors finally got to a diagnosis by ruling out everything else closely related and by what treatments worked and didn’t work. Neither high dose IV steroids or plasma exchange worked for me. IVIG was what finally worked. I get a 4 hour infusion every 3 weeks. That and an immunosuppressant are my main treatments along with numerous other medications to help with everything that came along with it. I was a healthy 49 year old when this came on. I got the COVID vaccine about 6 months before it happened, so my doctors don’t think the vaccine had anything to do with it, but rather COVID itself since I had it 6 weeks before my symptoms started and a lot of times it’s brought on by a viral infection. This is the chronic version of GBS. How long have you had symptoms?

CIDP is diagnosed with a lumbar puncture into the spinal cord. They remove spinal fluid and send it off for testing