← Return to Diagnosed with Ameloblastoma
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Replies to "Hi everyone, new to this forum with a recent diagnosis of ameloblastoma in the right maxilla...."
Hi @la93 Because an Ameloblastoma is very rare, you should definitely enquirer as to the surgeon’s experience with this. This applies to the surgeon who has recommended the fibula free flap as well. The latter operation requires an experienced team to perform yet the timeline given sounds about right. That surgery, horrible as it might sound, often has great results, mine included.
In a nutshell, consult to find experience. This is your life, not the local doctor’s.
Personally I would recommend Mayo as well. However Mayo has trained many surgeons around the world in this procedure so perhaps your local team may be well versed.
I had ameloblastoma in the left maxilla 3 years ago. I went to Mayo Clinic in Rochester and had Drs. Arce and Ettinger perform the surgery. It was 10.5 hours, 1 week in the hospital with feeding tube and 1 week in an apartment with feeding tube. After 2 weeks feeding tube was removed and I was allowed to go home with a CAM boot on my left leg where they harvested the fibula free flap. After 3 years of follow up all is clear and have 2 more years to go. I would highly recommend Mayo Clinic.