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Daily random shocks throughout body

Chronic Pain | Last Active: Aug 10, 2023 | Replies (43)

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@kimabooker

Thank you. The shocks happen randomly throughout the day. We have periodically tracked when the shocks happen and there just seems to be no rhyme or reason. We have noticed that when they lay down or sit and rest that it seems the most noticible but that could be just because they are in a more relaxed state so it may seem worse.
It's definitely not from injury because they both have always had them. They thought everyone had them and it was normal. It wasn't until my son was over 10 when he said something to me and I was like what are you talking about...people don't get shocks everyday. Looking back it makes sense because I would see them jerk or get a strange look on their face and now I know it was them getting shocks even as early as 4 yrs old.

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Replies to "Thank you. The shocks happen randomly throughout the day. We have periodically tracked when the shocks..."

Hi. I'm Tiffany. I also have suffered the full body shocks for many years. I'm 37. I have a rare terminal auto immune diseases called Scleroderma and a ton of sub diseases that go hand in hand. My drs all think im crazy too when I mention it. For me the shock is like a lightning strike and it starts in my brain and goes down to my toes. But literally goes top to bottom every time. It's so painful. It happens every single day and usually only when I'm resting. If I take an afternoon nap it happens. My neurologist thought I was delusional. I still don't know what causes it... but it would be awesome to have a name or word for what this thing is... and I'd love a way to get it to stop. But scleroderma has NO CURE so I'm probably never going to know. But your kids are NOT alone! Keep yalls heads up.