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DiscussionDaily random shocks throughout body
Chronic Pain | Last Active: Aug 10, 2023 | Replies (43)Comment receiving replies
Replies to "Thank you. The shocks happen randomly throughout the day. We have periodically tracked when the shocks..."
Hi. I'm Tiffany. I also have suffered the full body shocks for many years. I'm 37. I have a rare terminal auto immune diseases called Scleroderma and a ton of sub diseases that go hand in hand. My drs all think im crazy too when I mention it. For me the shock is like a lightning strike and it starts in my brain and goes down to my toes. But literally goes top to bottom every time. It's so painful. It happens every single day and usually only when I'm resting. If I take an afternoon nap it happens. My neurologist thought I was delusional. I still don't know what causes it... but it would be awesome to have a name or word for what this thing is... and I'd love a way to get it to stop. But scleroderma has NO CURE so I'm probably never going to know. But your kids are NOT alone! Keep yalls heads up.