← Return to Anyone dealing with brain cancer

Discussion
butterbutt avatar

Anyone dealing with brain cancer

Brain Tumor | Last Active: Jul 5 4:55pm | Replies (27)

Comment receiving replies
Profile picture for dconway817 @dconway817

Thank you for replying. I happy to hear your husband is doing quiet well.

We have not made a decision on the Optune array yet. We had spoken with our radiation oncologist briefly and feel we need more information. How other than sweating with the arrays does he feel? How long has he been using the Optune cap? We are in Scottsdale, Arizona so not outside too much at this time of year other than the swimming pool.

I would love any other tips you could pass. Dana

Jump to this post


Replies to "Thank you for replying. I happy to hear your husband is doing quiet well. We have..."

My husband adapted quickly to the Optune device. The worst part about it was having to shave the rest of his head!
He doesn't "feel" the array's impact. He feels the cords dangling, and when he gets up from his chair and forgets he is plugged into the wall, he is quickly reminded because the cord only goes so far, lol. But there is really no sensation.

When you shower, or swim in your case, you unplug from the device and put the array cords wadded up in a shower cap. It's cumbersome, but doable for sure.

It takes about 20 minutes to apply the arrays when we change them. We change them whenever they stop sticking, which varies with his activity. They recommend every 2-3 days, but we've changed them sometimes twice a day when he mows the grass and sweats profusely.

We ordered a backpack, which came right away, and recommend that instead of the "pouch" you carry or hook to a strap. All supplies come quickly, and customer service is amazing.

Our oncologist told us of patients who have seen great success, which he attributes to the Optune device. We can only hope it is successful for us.

I'm including some pictures so you get a better idea of what to expect. Note: The brochures say it is easier to wear button-up shirts. He likes his t-shirts, so we just thread the cords in their sleeve through the neck hole, easy peasy.