What is the best treatment for carcinoid tumor in mesentery?
I am going to have to seek a treatment; what do you suggest
1tumor.
I have a carcinoid tumor in the Centrist part of my body and it is inoperable by my surgeon.
If you have such a tumor please tell me what you are doing.
Mine is growing real slow and I have not done anything will check in June of this year to see if it is still growing slowly. Do not know if left alone will it massify.
If you suggest certain treatments and throw out the treatment, define what the medicine is going to do. They have suggested a shot once a month and I see people getting a shot once a month with different medications.
treatment one
PRRT ( peptide receptor radionuclide therapy) is a radiation treatment.. I was on Ocreotide injections for over a year, it did stop the flushing, and the spread of the tumors, but a few of existing tumors were still growing. The PRRT treatments were to stop the ones from growing.. I will be receiving my third treatment at the end of the month, and the last one in May. I will also be getting a scan prior to the next treatment . The PRRT treatment I am receiving is Lutathera. There is a lot of info on line..
treatment two
Researchers are also looking at a new type of radiation, called radiopharmaceuticals. This treatment uses a drug that is attracted to carcinoid tumors. This drug is then attached to a radioactive substance and injected into the body. Once the drug reaches the tumor, it gives off radiation that kills the tumor cells.
treatments three and four
My husband took Octreotide shots for about 18 months, side effects slightly looser stools & then started breaking out into face & neck rashes so he was switched to Lanreotide. He has been fine with this new shot . We have been fighting this since 2021
My personal experience is prrt is a four hour long session finishing up with a landreotide injection. An advanced treatment prrt, and landreotide is to keep the net at bay. There’s plenty of information available online. I have just finished prrt and still on landreotide. Both were tolerable for me and I hear different for everyone.
I am also one of the lucky ones with carcinoid syndrome.. started with Lanreotide which didn’t help had ab 15-20 episodes a day, Dr. switched me to ocreotide over a year ago, within hours the hot flashes subsided, and have been under control since then.. I pretty much can eat anything, I do try and stay away from carbs, and sugar but that is to prevent me from going on diabetes meds.. have a wonderful weekend!
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
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Current total is 7.2 I think you made addition mistake
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1 ReactionKevin, you are right. It's gotta be the cancer affecting my math! 🙂
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1 ReactionI know that feeling chemo does it to us!
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1 ReactionWhat treatments have you been on? Is that your only tumor?
only discovered but was on past scans, have done nothing and may do that again for the next six months
November 11 i will check again, which shot should i use
i Have a carcinoid tumor small in the middle of my intestines and is inoperable i am now using diet, Reliv, exercise to keep it small, if it starts to grow quickly what is the best treatment to get rid of it.My doctor does not want me to use pprt or other treatments calls it overkill and wants me to take shots. what really should i do? I have found in the past that i must search for answers instead of listening to doctors. I am 86 because i am in control of my health and in excellent health am overcoming a triple heart bypass and have been set free to continue as i wish. I play golf once a week, bowl twice and workout at the ymca at least 3 to 5 times a week. will have a scan in October to see if my plan is working.
I have had a new scan have not been doing anything to stop it except diet and exercise. I feel i must do more what do you recommend.
VASCULATURE, FLUID SURVEY, LYMPH NODES : No free fluid. A partially calcified mesenteric mass measures 4.9 x 3.1 cm on image 362 of series 8, previously 4.3 x 2.9 cm. A nodule immediately superior to this measures 1.2 x 1.2 cm on image 333, increased from 0.8 x 0.9 cm.
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2 ReactionsSupport from other patients is good, but there is no substitute for informed medical advice. Diet and exercise alone are not enough, that much i can say from experience.
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5 ReactionsI'm sorry you're seeing progression. Sounds like it's time for some treatment. I strongly recommend that you consult with a net specialist in order to get the best advice as to how to proceed. You can find a list of specialists by state at http://www.netrf.org
At a minimum, I imagine they would recommend that octreotide or lanreotide injections should start
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