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Does anyone else have neuropathy?
MAC & Bronchiectasis | Last Active: Jun 9 8:50am | Replies (36)Comment receiving replies
I experienced neuropathy after about four months on the ethambutol and even then the doctors refused to say it was the ethambutol. I did come off the med and the neuropathy improved but my symptoms weren’t as pronounced as yours. It’s a good sign that it’s gotten a little better and hopefully it will keep getting better. All the best wishes to you.
Replies to "I experienced neuropathy after about four months on the ethambutol and even then the doctors refused..."
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Good to hear your experience. I completed the Big 3 over a year ago. Well, "Big 3" is not accurate because about 6 months in my neuropathy in my feet and legs got worse, so the doctor stopped the Ethambutol and I continued with the other 2 antibiotics. In March 2024 I passed a sputum test with no MAC. The neuropathy "may" be getting a bit better, but it is hard to say because I have some oestheoarthritis in my knees and hips. On the whole I would say the antibiotic treatment was a good thing, though I also believe that the MAC may never resolve completely. I also have bronchiecstasis, which often goes with MAC. I had some neuropathy before the antibiotic treatment, but it definitely got worse when I took the Ethambutol. I hope you are feeling better!