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Has your doctor been straightforward about your survival?
Gynecologic Cancers | Last Active: Sep 7, 2025 | Replies (93)Comment receiving replies
There is definitely not enough research on gyn cancers. As a Grade 2 endometrial cancer patient who has learned that EC is so vastly different from woman to woman, as well as the disappointing OS outcomes of clinical trials for the most aggressive cancers, I often feel left behind. We need a Komen-like group just for us, one that spurs not just support (shout out to all of you!) but research and data. Maybe the world just doesn’t want to picture where our cancers lie. 😉
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I agree on all counts!
I am IICm p53abn grade 2 endometrioid cancer. I have found a lot of research on my mutation type. My problem is that my doctor gave me an over-the-top positive prognosis of 98% 5-year OS. Doing my own research, it's more like 36%-70% depending on other risk factors and treatment choices. My doctor (not at Mayo) has a treatment plan based on the assumption that my cancer is low risk. I have an appointment for a second opinion at the U of MN Masonic Cancer Center (I live in the Twin Cities). My husband went to Mayo for his prostate cancer and got cutting-edge care. If Masonic doesn't work out, I'm Rochester-bound.
BTW, I used to work for the VA to push for the implementation of evidence-based care for colorectal cancer. I never thought the skill set I developed there would be so personally useful. If I can help anyone else in any way, I'd be honored to do so.