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Testing Negative For Huntington’s Disease

Brain & Nervous System | Last Active: Jun 6 5:55pm | Replies (16)

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my husband, father in law, his grandmother and his 2 siblings all died from HD. I have been trying to help the nieces, nephews who are testing both positive and some thankfully test negative with many more not knowing or choose not to know. You can help your family by leading them to the resources and education that are available to them. I cant imagine how you feel but perhaps taking action to help your family members would help your feelings about it all.

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Replies to "my husband, father in law, his grandmother and his 2 siblings all died from HD. I..."

Thank you so much for sharing. How are you?

Alexa2020, I am so sorry for all of your losses, especially your husband. What were the ages when most of your family passed? The TV show Virgin River has a HD story line, and I always think when I see any mention of these horrible diseases that shining a light in any amount might bring about some positive advances in care and cures. I can understand every situation in when you might want to know, and not want to know, deciding how to move forward with that knowledge that you have it must be a terrible burden to carry. God bless your family, and you for trying to be there for them as they navigate such a weighty decision and outcome. ❤️