Thank you so much for sharing. How are you?

Alexa2020, I am so sorry for all of your losses, especially your husband. What were the ages when most of your family passed? The TV show Virgin River has a HD story line, and I always think when I see any mention of these horrible diseases that shining a light in any amount might bring about some positive advances in care and cures. I can understand every situation in when you might want to know, and not want to know, deciding how to move forward with that knowledge that you have it must be a terrible burden to carry. God bless your family, and you for trying to be there for them as they navigate such a weighty decision and outcome. ❤️

@alexa2020 My husband is currently battling with Huntington's disease. He is the first in his line to be diagnosed, but based on symptoms before death we were able to trace it back. It's difficult trying to help the next generation (my kids, nieces and nephews) with resources if they choose to be tested. My husband had one sibling who died with similar symptoms but was not diagnosed. It took many years of symptoms, dealing with multiple doctors before someone finally pointed us in the right direction for a diagnosis. There's also research giving hope to eventually having a cure, but too late for my husband. Fortunately we have an excellent care team that has helped with symptoms. It sounds like you are helping others, Thank you. We were told this is considered a rare disease, but based on the 50-50 genetics and our family history I believe it under-diagnosed.