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Medication linked to Peripheral Neuropathy

Neuropathy | Last Active: Jun 17 4:25pm | Replies (31)

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@ray666

Good morning, Dick (@dickjoan)

Allow me also to welcome you to Connect! I think you'll find, as I did, this to be a most rewarding site.

I'm 80. I have idiopathic large-fiber neuropathy, so no pain but lots of balance problems. I was diagnosed in the summer of 2022, but once I knew why my balance was going all-wonky, I realized the onset of my problem had begun many yeas before, easily 10 years before, when I attributed my increasing wobbliness to age.

I applaud your walking 4-5 miles a day! In my book, that's astonishing. I used to be able to walk long distances, but no more.

For me, it's a combination of leg weakness (which I work on to improve) and shortness of breath (thanks not so much to my neuropathy but to a septic infection I had last year).

I, too, take atorvastatin, but only since last year (because of the septic infection). Only the other day I set a message to my primary doc asking if I would have to continue taking atorvastatin or could I one day be taken off of it. I haven't heard back from her yet.

As far as slowing neuropathy's progression, my only advice (based strictly on my own experience) is to keep moving (which it sounds like you already do). My life is largely sedentary, sitting at this laptop, but I've a kitchen timer just off the side of the laptop a-ticking away to remind to get up and move around every 25-30 minutes.

And as it is about to signal for my next git-up-and-move, I'll end this, again saying, Welcome to Connect!

Cheers!
Ray (@ray666)

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Replies to "Good morning, Dick (@dickjoan) Allow me also to welcome you to Connect! I think you'll find,..."

I agree with your advice, Ray. Movement is very important. Like you, I was once able to walk greater distances. Now not so much. But I do try to walk every day and am now in physical therapy. My muscles have weakened so I am trying very hard to strengthen them. The wobbly leg feeling is very disconcerting. I also say that medicine can play an adverse role in this neuropathy challenge.

thanks for your comments, I look forward to communicating with more PN
individuals.running and walking has been part of my life for many years. you mentioned that you used a timer to remind you to move, I have an Apple watch
which my kids gave me 10 yrs ago, didn't use much at first but I'm now on my third one latest generation. reminds me to stand/move keep tract of some vitals
and notifies family or ? if I have fallen...lots of other features...there are many other similar products by other providers, my watch is paired to my apple phone.I am on the statin for cholesterol control which statins have been good for me but always wondered if related to progression of neuropathy. good luck and hope you can get into some exercise program(have you tried stationary bike, not so hard on your back)