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Lupus or not Lupus?

Autoimmune Diseases | Last Active: 5 days ago | Replies (55)

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@fairn

I'm a DES daughter as well, and have felt there must be a connection between that exposure and the health issues I've had - pre-cancerous cervix, endometriosis, polycystic ovaries, miscarriages, Dupuytren's and unexplained inflammation in hand, a spontaneous spinal fluid leak, frozen shoulder, Lederhosen in both feet, necrotic eardrum and malformed eustachian tube (requiring an eardrum replacement), asthma, granulomatous apical scarring in
the lungs, hyperparathyroidism due to hyperplasia of parathyroid gland, osteoporosis and within the last 6 years, positive ANA and CCP with a pending diagnosis to see if it's RA, connective tissue disease (my thinking), or possibly lupus. Whew! What a list when I write it all down, and I've probably forgotten something! I've done searches for DES and autoimmune diseases, I wish there was more information about it. I'm also Rh- blood type; none of my 4 siblings have any of these aside from some mild Dupytrens.

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Replies to "I'm a DES daughter as well, and have felt there must be a connection between that..."

Your list runs like mine with a lot in common. I was told I had connective tissue disease like my father, we both had a lot of the same symptoms. They didn’t do an autopsy so we never found out what he had. Blood test antibodies for MG showed up at age 60 on me so doctors don’t even list connective tissue or Lupus on my diagnoses sheet anymore