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Trouble going below 3mg

Polymyalgia Rheumatica (PMR) | Last Active: Jun 10 3:21pm | Replies (27)

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@jeff97

I'm 2 weeks into 3 mg per day. In 2 weeks I'll drop to 2 mg, and then in 4 weeks to 1, and then hopefully in 4 more weeks to 0. This is my rheumatologist's plan.

This past weekend I did about 10 hours of hard physical labor over 2 days, and I have felt ok this week, just a little tired. I hope the fact I could do that much work and recover ok indicates my adrenals are functioning. I guess I'll find out with my next step down.

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Replies to "I'm 2 weeks into 3 mg per day. In 2 weeks I'll drop to 2 mg,..."

I am getting more than a little tired and achy so maybe I did not stay at 3mg long enough.
That article implied that some people would/could/should be at 3mg forever.
Does everybody taking a biologic or DMARD get to 0mg prednisone?
There is a hefty copay with my insurance for the biologics. I know people say it could be covered if ordered as an infusion. My formulary does not have infusion listed as an option, only injections of varying strength. I did not call insurance though, only did a search of covered meds.

"I hope the fact I could do that much work and recover ok indicates my adrenals are functioning."
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I don't know what it means but "recovery time after exercise" was what I noticed the most after I got off Prednisone. I worked with a physical therapist initially. We would do sets of 10 reps of different exercises. I started with one set but I had to rest between exercises. The whole session with the physical therapist was more rest than exercise. Afterwards I went home and I was wiped out for 24 hours. My improvement was gradual but with time I was doing 3 sets of 10 reps with almost no rest between exercises.

I exercise on my own now. I like aquacise the most. Yesterday I spent 2 hours in the pool and went home and mowed the grass for more than an hour before a short nap. I still get tired but not as easily.