Anybody here have chronic constipation & pelvic floor dysfunction?

Posted by ltarashuk @ltarashuk, Mar 31 2:22pm

Hi,
I have slow transit constipation and have been going to pelvic floor PT and have been treated with various medication and laxatives but I feel like I am dealing with so much diarrhea it’s interfering with my daily living. I was wondering if anyone has had any success living with these issues? Thank you

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@mothermary1

The most recent drug for constipation is IBSRela. I have severe motility so absolutely nothing works for me but when a new drug hits the market my Gastro reaches out.
My regimen is pretty severe and my doctor in Atlanta wants me to go to Mayo.

The problem is everyone on here says you can’t get an appointment for years. I want to see if they can figure me out before I decide on a total colectomy. I’ve been dealing with this for 5 years and I’ve been very lucky but my regimen won’t last forever as it’s extensive now to be able to go twice a week.

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I got in within a month. I filled out the form on line and all they care about is your insurance….. yes, I got into a urogynocologist and gastrointestinal doc. I flew to MSP and caught Groome Transportation to Centerstone Plaza (best busses to and from clinics and ask for the mayo rate.). This is your easiest route. DO NOT WAIT FOR YOUR DOC TO DO A REFERRAL. I made that mistake. they take all insurance other than Medicare advantage. DO IT! I will not go anywhere else now. I’m set for the Medtronic tiny interstim device in Sept. I could have done it in July. I have been to Mayo for osteoarthritis and hand surgeries, triple hernia repair in March this year, feet issues solved. Knee issue solved with persistence and a shot in the bursa sac of my knee. Colonoscopy that ended in the surgery room. The hospital was heavenly and I never ever see an employee unhappy…….. GO GO GO! Twigs restaurant attached to Centerstone is awesome. One now friend I met there stayed at Centerstone for 7 months for cancer treatments. The you cannot get an appt for years is baloney. Go to Rochester. Phoenix is harder to get into and Rochester has the most doctors. 1000…………….

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You will need to go on line to Groome Transportation and set appts for the smaller vans to and from the MSP airport. you can fly into Rochester but $$$$$$$

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@judysellsnaples

I got in within a month. I filled out the form on line and all they care about is your insurance….. yes, I got into a urogynocologist and gastrointestinal doc. I flew to MSP and caught Groome Transportation to Centerstone Plaza (best busses to and from clinics and ask for the mayo rate.). This is your easiest route. DO NOT WAIT FOR YOUR DOC TO DO A REFERRAL. I made that mistake. they take all insurance other than Medicare advantage. DO IT! I will not go anywhere else now. I’m set for the Medtronic tiny interstim device in Sept. I could have done it in July. I have been to Mayo for osteoarthritis and hand surgeries, triple hernia repair in March this year, feet issues solved. Knee issue solved with persistence and a shot in the bursa sac of my knee. Colonoscopy that ended in the surgery room. The hospital was heavenly and I never ever see an employee unhappy…….. GO GO GO! Twigs restaurant attached to Centerstone is awesome. One now friend I met there stayed at Centerstone for 7 months for cancer treatments. The you cannot get an appt for years is baloney. Go to Rochester. Phoenix is harder to get into and Rochester has the most doctors. 1000…………….

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Thank you..everything moves like turtles. I’ll call myself.
Right now due to gastroparesis my teeth are going from wonderful to massive decay. Next week I’m getting one entire side extracted. It’s happing so fast. I suffer severe dry mouth and my vitamin levels are all low, my diet is poor. It never stops.

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@mothermary1

Thank you..everything moves like turtles. I’ll call myself.
Right now due to gastroparesis my teeth are going from wonderful to massive decay. Next week I’m getting one entire side extracted. It’s happing so fast. I suffer severe dry mouth and my vitamin levels are all low, my diet is poor. It never stops.

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Oh no! Just fill out the on line form and they call the next day. They are on top of it! I’m so sorry.

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@mothermary1

Thank you..everything moves like turtles. I’ll call myself.
Right now due to gastroparesis my teeth are going from wonderful to massive decay. Next week I’m getting one entire side extracted. It’s happing so fast. I suffer severe dry mouth and my vitamin levels are all low, my diet is poor. It never stops.

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I went on a plant based diet and lost 20 lbs as well as it helped my gut. I have to cook my veggies till they’re soft and I eat Greek yogurt and only sourdough bread. I make sure I get the 8 glasses a day of liquid, made up of my green tea with ginger, water and shakes.
I drink 3 collagen and protein shakes a day, take a multivitamin and some supplements like R-ALA and use olive oil, coconut oil, and ground flaxseed every day. I’m getting enough protein, vitamins, minerals, healthy fats and fiber now. I limit my meat to grass fed a few times a week and once in a while I’ll have something dairy or a carb.
I feel better despite all my chronic and autoimmune conditions. It’s a battle with my teeth, and I’ve accepted they’re never going to be white, so I smile small. I used to have a beautiful smile people always told me, so it’s been hard to deal with. I’m not a candidate for veneers. I’ve lost so many teeth over the years I have only crowns for molars so it’s hard to chew anything. Anyway, have to focus on the positive. I hope this helps somehow.

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@margaretsmith328

Has your dr mentioned trying the Interstim? It suppose to help with urinary as well as fecal incontinence. I’m scheduled for the trial period at the end of June. Wishing you the best.

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I have an Interstim implant for urinary and fecal incontinence. It did not work. I asked about having it removed and my urologist and colon surgeon both said they are extremely difficult to remove because the leads can break off. Obviously that can create problems. was not told that prior to having the surgery!

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