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Has anyone been diagnosed with this disorder?
Autoimmune Diseases | Last Active: Jun 7 11:59am | Replies (8)Comment receiving replies
Hypogammaglobulinemia
I was treated for Chronic mina, I was being treated for Iron Deficiency. But taking Iron in pill form, seem to be working, Then it would comes back very low again. But they found in my blood that my Antibodies We're very low. At first, when the Doctor was talking I
thought he was talking about my Iron deficiency. No he was not talking
Iron, He was talking about low antibodies. He told me that my Antibodies were low. He said very low. So I asked him how low were they, He said They were about a ten. I asked him if that was good or bad.
He told me I would have to see a Imanologist. She Diagnose me with Hypogammaglobulinemia. So, once a week I take my Infusion. But, Complications set in.
I had diverticulitis . Then in January, I was very sick, I was throwing up, and had severe diarrhea. They thought it was the Nor virus, I was so dehydrated. That they could harding get any blood out of me. Also, I had Acute colitis, I had UTI. Then at the end of March and the beginning of April, I was Diagnosed with colitis again. And in the end of May, I came down with diverticulitis again 2nd time around.. then with all the Antibiotics, on broad. My dentist, said I have plenty of Antibiotics from being in the hospital. But,, these Annabotics I have been taking for. Caused my c-dff to Flare.
Replies to "Hypogammaglobulinemia I was treated for Chronic mina, I was being treated for Iron Deficiency. But taking..."
Antibiotics cause your gut flora to be killed off, both good and bad bacteria. I had many infections and procedures that did this. To rebuild my good gut bacteria I took a prebiotics capsule, drank kefir, coconut milk, coconut oil, olive oil, Greek yogurt (not sweet yogurt). I couldn’t tolerate kimchi, pickles, sauerkraut or kombucha, as they’re very acidic.
I stopped eating and drinking anything with sugar, including soda, as that causes the bad bacteria to grow.
I got a natural super greens organic food powder with 50 nutrients in it to make tea. I drank green tea with ginger, and “Bio Czystek” (Citrus Incanus) tea leaves, which helped the most in the very beginning of my healing. I got it on Amazon. A big bag is expensive, so if you can find a little one that would help with the cost. But it’s absolutely worth it.
To heal, try to stick to organic and limit meat and dairy. Cook your veggies soft until your gut feels better too.
The doctors are real big on prescriptions but they’re hard on the gut. They won’t teach you the natural way to heal your gut. I ended up on their “soothing” prescriptions after the antibiotics, like antacids etc, and they didn’t help.
Takes a while to get your gut fixed but you’ll feel so much better and will know what to do the next time. You’ll also maintain a healthy weight after your gut gets fixed if you follow this and then reintroduce grass fed meats and small amounts of dairy and only sourdough bread. It has natural yeast in it that feeds the gut and is not junk food like breads are.
Hope all this helps. I was actually bleeding and had multiple infections and ecoli in my bloodstream. It took a year and a half to get back to normal doing my own research and learning how to do this
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I assume you were taking gamma globin (IvIg) for your condition? How many infusions did you get to have before the other conditions got involved? If you have C-diff then there is a GI doc involved. Ask him (or her) what kind of specialist you need to see and can you do it quickly to expidite treatment. You need the right antibiotic. Hopefully, the hospital did a culture and sensitivity to find out what to treat you with. Don't hesitate to ask questions until you understand. You certainly have a right to. Best Wishes!