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changes in penis appearance

Prostate Cancer | Last Active: Jun 9 7:03am | Replies (103)

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Thanks , I am recovering quickly but have a loooong road ahead. I will be having radiation and probably ADT sometime by the end of the year due to positive surgical margins. I currently in the process of being referred to an MO and RO. I am treated at the University of Rochester Wilmot cancer center.
I am 50 years old - pT3b diagnosis with Gleason 9, intraductal, cribriform, Lymphovascular invasion.
Good news is that none of the 19 lymph nodes had any cancer. I hope to be alive in 5 years, and will tell MO to throw everything at this. 🙂

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Replies to "Thanks , I am recovering quickly but have a loooong road ahead. I will be having..."

Oh yeah, and bladder neck invasion. I have that as well. By the time they are done with me, I will be more radioactive than Chernobyl. LOL!

I am so sorry to hear that your cancer is pretty aggressive but it is good thing that you discovered it before it did spread beyond pelvic area. I am absolutely sure that radiation + ADT will stop it in it's tracks ! We here have stage 4 PC veterans that lived for more than a decade and I am sure will live for many, many more years. There are many ways to keep this cancer in check and I am sure that in very near future there will be new medications and methods that will make PC curable at any stage.

My husband has 4+3 intermediate but unfavorable because he also has cribriform and IDC. After RP we will have more clear picture of exact gleason and margins since sometimes during surgery extra things are discovered which could not be seen on PSMA and MRI etc.

I hope that you will stay on this forum since we here have amazingly smart, compassionate and knowledgeable members that are always eager to help and answer any question. I know that I would have been lost without them - I am forever grateful to all of the members of this forum < 3. Just 2 months ago my whole world collapsed and I could not stop crying or even think about the future but everybody here gave me a crush course not only about PC treatments and terminology but also about even more important things like positive attitude, bravery and survivorship :).