changes in penis appearance

Glenn, I know that it looks like very long time but it is just 3 mos since your surgery. If you go through many threads here, you will find whole spectrum of patients post RP, from ones that had zero incontinence to ones that had full incontinence BUT most belong somewhere in between and very few end up being fully incontinent after a year of recovery. That is why urologists always say to wait a year to actually make assessment of the situation. It is great that you started with Kegel exercises. Did you ask for professional help with exercise program, or you are doing it on your own ? Some people here had better result working with PT. I am so sorry that you got hernia on top of it - you know there was one case here where person actually had big improvement with incontinence after hernia repair. Maybe it will happen for you too - is your hernia umbilical or inguinal ? At the end, if your incontinence does not improve on its own, there are methods to correct it. For now try to concentrate on your recovery and take it easy and I wish you the best of luck with your hernia repair. Let us know how it goes !

Thanks John for sharing your experience 🙂 and for good luck wishes < 3 !
I hope that you are now feeling much better and I am wishing you speedy and full recovery 🙂

Thanks , I am recovering quickly but have a loooong road ahead. I will be having radiation and probably ADT sometime by the end of the year due to positive surgical margins. I currently in the process of being referred to an MO and RO. I am treated at the University of Rochester Wilmot cancer center.
I am 50 years old - pT3b diagnosis with Gleason 9, intraductal, cribriform, Lymphovascular invasion.
Good news is that none of the 19 lymph nodes had any cancer. I hope to be alive in 5 years, and will tell MO to throw everything at this. 🙂

Oh yeah, and bladder neck invasion. I have that as well. By the time they are done with me, I will be more radioactive than Chernobyl. LOL!

I am so sorry to hear that your cancer is pretty aggressive but it is good thing that you discovered it before it did spread beyond pelvic area. I am absolutely sure that radiation + ADT will stop it in it's tracks ! We here have stage 4 PC veterans that lived for more than a decade and I am sure will live for many, many more years. There are many ways to keep this cancer in check and I am sure that in very near future there will be new medications and methods that will make PC curable at any stage.

My husband has 4+3 intermediate but unfavorable because he also has cribriform and IDC. After RP we will have more clear picture of exact gleason and margins since sometimes during surgery extra things are discovered which could not be seen on PSMA and MRI etc.

I hope that you will stay on this forum since we here have amazingly smart, compassionate and knowledgeable members that are always eager to help and answer any question. I know that I would have been lost without them - I am forever grateful to all of the members of this forum < 3. Just 2 months ago my whole world collapsed and I could not stop crying or even think about the future but everybody here gave me a crush course not only about PC treatments and terminology but also about even more important things like positive attitude, bravery and survivorship :).

Like most things in life and especially PC and other serious forms of Cancer. Various patients experience different outcomes and results.
I was very sexually actives with my wife prior to surgery. It will be 3 years this October since I had my “RALP” completed.
I had a 8 and a half inch long penis before surgery. Now it’s about 5 and 3 quarter’s inches. Frankly, it’s a big deal to me. It’s just a fact that anatomically I can’t do some of the same things I used to do from a sexual standpoint regarding intercourse. Thankfully, it still feels great although I am less sensitive then before but with the injection of TRIMIX I can still obtain and use a reliable erection when needed. The ED pills don’t do anything and at best., I can manage to create about an 80 to 85% erection on my own which isn’t hard enough or reliable enough to have sexual intercourse. I was fully functional and didn’t have any kind of ED issues prior to my surgery. My “Nerve Sparing” surgery was successful but my ability to create and maintain a normal erection has not returned after almost 3 years.
I am indeed grateful that
TRIMIX exists and provides me the opportunity to have firm enough erection for satisfying sexual intercourse. Everybody is different and more or less willing to accept what they have and can due following surgery.
I never met a woman yet that didn’t resoundingly prefer a very stiff and firm erection compared to anything less than that. Of course, various recommendations by therapists and doctors try to placate you with other types of sexual activities and adjustments etc. One must try and do the best they can with whatever they’ve got! However, I was confidently assured that a year or two after my surgery that my erections would fully return to my pre surgery states of wellbeing and activity level.
The shrinkage in length was barely mentioned and when it was, the medical profession tossed around numbers like a quarter of an inch or half of an inch as the only loss of length I should likely experience.
Well, my results were far worse than this all the way around.
Of course, most importantly, I am in a state of “REMISSION” and very happy and grateful to be so. I certainly pray that it always remains that way.
However, without TRIMIX, I wouldn’t be able to have or enjoy sexual intercourse at all.. I hope most patients get a better overall result than I did.
Best wishes and good luck.

Thanks you so much! I am thankful it was caught before it spread any further. My PSA was checked every year and was about 1.0, and then jumped to 4.3. Surgeon said that it had been growing for about 6 years. I also value very much the other members on this forum and shared experiences. Thanks again!!

Interested in more then six doses for Pluvicto.

Thank you for the input.I had surgery yesterday for the incisional hernia.Am in a lot of pain but once this passes hopefully the incontinence improves.

Hi Glenn, wishing you full and and fast recovery :).
Sending you healing vibes and hopefully you will soon see improvement in an incontinence too ! One step a time, don't push yourself. You went through two surgeries in just 3 months, that is great stress for a body, not to mention mind. Stay hydrated and rest as much as possible ! When in a month or two when you feel better try to find PT for pelvic floor rehabilitation and have at least couple of supervised sessions of exercise. Always keep in mind that there is a solution for incontinence IF you ever need it. like ProACT and similar. BUT, I am sure that your situation will improve by year 1 🙂 !