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Hormone replacement therapy to combat TBI?
Traumatic Brain Injury (TBI) | Last Active: Jun 7 11:40am | Replies (16)Comment receiving replies
Happy to check back with you, @sadivari. Glad to hear you are continuing to consult experts with the endocrinologist visit and the concussion clinic. I'm sorry to hear you are not feeling taken seriously.
I can't imagine hitting my head so hard on a glass door that it broke my neck. That is a really hard hit. Having worsening vision and eye pain would be tough, as would nose dripping without warning. I have coughing with no warning at times (related to allergic asthma in my case). It's embarrassing, especially if I'm at church, a concert, a funeral or any large gathering. I sometimes put a cough drop in my mouth to mask the cough for a bit. Sometimes I just bite the bullet (cause it calls attention to itself and looks weird) and go to what really helps me with my cough, calming my airways with inhaling some Albuterol, right in the middle of an auditorium, when some other noise can mask it a bit.
Nice that you were able to get your blood pressure down to normal range. Sounds like you are working hard to get to the bottom of all this.
Hoping that some other members who've talked about TBI can provide some support as you seek answers for these symptoms since you hit your head, especially the high hormone levels. They also may have some ideas related to the worsened vision, eye pain and tumor at the base of your head. If you've not met already, please meet @lakelifelady @slowrunner1 @lkas @IndianaScott @dawnpereda @celia16 @kayabbott @hevykevy @gregd1956 @celia16.
What pills helped bring your blood pressure down to normal? Which hormones were elevated in the blood test?
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Hi Lisa....thank you again for your message....My issues go so deep it seems impossible for one person to have gone thru a life of weird things happening to them. That is one reason I am having such a hard time with doctors, especially here in Georgia, taking this as a serious issue. You spoke of coughing drawing attention to yourself. With my leaky nose I sound like I'm sniffing cocaine!! Constantly sniffing. Born with club feet, being harassed my entire childhood for wearing what looked like brown combat boots (today's bullying) I called it being made fun of back in the 50's. Managed that, injured on my job in my late 20's and went on over the years to rupture and tear 9 main body parts. Took me until I was 70 to discover I have Ehlers Danlos Syndrome, the genetic connective tissue disorder. Had foot reconstruction when my toe became dislocated and my whole foot curved, surgery accident caused by an unlicensed Physician's Assistant and medical records falsified so the surgeon wouldn't lose his license. I ended up with RSD/CRPS type 2. Georgia Medical Board knew this and did nothing. that was in 2017, I was in my 60's. It took years to get over the emotional harm that did to me. I finally let it go because no one cared and I was doing really well, both physically and mentally. Then I tripped going in to that restaurant where their walkway was not maintained, a brick was loose and raised 1/2" above the others. I must have stumbled forward 10 ft. picking up speed and no way to stop. Luckily I was with my best friend who was a nurse for 40 years. It took over 30 minutes for EMT to get there and 911 wanted her to roll me over. They estimate I was unconscious for between 39-59 minutes. Thank God she knew not to do that and also lucky my neck broke at the C-3 level but broke in place horizontally. The people responsible have spent the past year and a half going over my medical records going back over 30 years. I never signed the release for them to get these records. So much for the HIPPA law. I've always made the most of this but it's been hard on my family, I only have a husband and a daughter, 2 grandchildren. You asked about what pills finally brought down my BP. I take three in the morning, Nifedipine ER 30mg. Nebivolol 10mg. and Olmesartan 20 mg. and before bed I take a second Nifedipine. I would have to go into my medical records to get the hormones that are way off. The worst is hot flashes again after all these years, and I'm sure my hormones are the cause of my craziness. My whole life I was happy go lucky very social person, I tend to get nasty now......hopefully the new concussion center might shed some light on if and when I will get better. I have a lot of life left in me, I'm not going to sleep it away. the exhaustion is beyond anything I have ever been through.....