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Hormone replacement therapy to combat TBI?
Traumatic Brain Injury (TBI) | Last Active: Jun 7 11:40am | Replies (16)Comment receiving replies
Thank you for asking. I am about the same, vision is worsening in one eye and nose still drips without warning. A bit embarrassing in front of people. My vision on the side where my forehead is dented blurs to the point where I can not read. Eye pain behind the upper lid wakes me at night. I was able to get my BP down from in the 200's (upper #) for over a year and a half back to normal range with a combination of 3 pills. In testing for why my BP was as high as 240/169 I had kidney tests done. They thought I might have a tumor on my adrenal gland. I did not, but the blood results show my hormone numbers were double and triple what is normal. I see an endocrinologist Monday. I've read a TBI can affect your hormones. They did find a tumor at the base of my head sitting on an artery. Told it's doing no harm and my head injury has nothing to do with any of my symptoms. I see a different concussion clinic on the 12th. Maybe someone will take this seriously........but not likely. thanks again for checking back.
Replies to "Thank you for asking. I am about the same, vision is worsening in one eye and..."
As we get older our health issues become more complex and treatment more difficult. Are you near a teaching hospital where your mix can be evaluated, more so than unconnected doctors? Have you seen an ophthalmologist regarding the vision changes; dry eye, pressure, or macular issues can be treated and those should be addressed to avoid damage. If dry eye is a factor, then preservative-free eye drops help and gel drops before bed (been there, done that). My moderate TBI was 32 years ago and I still have word-finding problems, but now have a normal EEG, so doctors don't always see the fine print. It would be good to keep a journal of all your symptoms, including taking BP measurements. I hope your endocrinologist visit bears fruit and that you are able to get answers to your health problems, but it is a frustratingly slow process.
Slowrunner here. Oof, you are a fighter! I am a wimp in comparison. That said, the strength you exhibet is to be admired. I marked the 12th on my calender to remind myself to think of you. You might want to take a printed version of your email with you. That is what I do; I can write ok but I have difficulty expressing myself orally.
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Happy to check back with you, @sadivari. Glad to hear you are continuing to consult experts with the endocrinologist visit and the concussion clinic. I'm sorry to hear you are not feeling taken seriously.
I can't imagine hitting my head so hard on a glass door that it broke my neck. That is a really hard hit. Having worsening vision and eye pain would be tough, as would nose dripping without warning. I have coughing with no warning at times (related to allergic asthma in my case). It's embarrassing, especially if I'm at church, a concert, a funeral or any large gathering. I sometimes put a cough drop in my mouth to mask the cough for a bit. Sometimes I just bite the bullet (cause it calls attention to itself and looks weird) and go to what really helps me with my cough, calming my airways with inhaling some Albuterol, right in the middle of an auditorium, when some other noise can mask it a bit.
Nice that you were able to get your blood pressure down to normal range. Sounds like you are working hard to get to the bottom of all this.
Hoping that some other members who've talked about TBI can provide some support as you seek answers for these symptoms since you hit your head, especially the high hormone levels. They also may have some ideas related to the worsened vision, eye pain and tumor at the base of your head. If you've not met already, please meet @lakelifelady @slowrunner1 @lkas @IndianaScott @dawnpereda @celia16 @kayabbott @hevykevy @gregd1956 @celia16.
What pills helped bring your blood pressure down to normal? Which hormones were elevated in the blood test?