Connect
← Return to Anyone on VYVGART Hytrulo, a new treatment for CIDP?
Discussion
Anyone on VYVGART Hytrulo, a new treatment for CIDP?
Autoimmune Diseases | Last Active: Sep 18 2:15pm | Replies (76)Comment receiving replies
We have talked about it. I know his nurse would like it as she gets frustrated with how long it takes to find a good vein. He's a little wary of it but still considering it. His neuro PA is not opposed to a switch to Vyvgart but because he does so well with the IVIG infusions we're a bit worried about a switch. Don't want his legs to weaken. Thanks for your input.
Replies to "We have talked about it. I know his nurse would like it as she gets frustrated..."
Connect
I had posted on another thread about what I had been told by one of the nurses doing my infusion regarding Vyvgart. Take this with a grain of salt and do your own homework please but she said the pharma rep told her Vyvgart specifically targets one of the CIDP causes while IVIG is more broad spectrum and covers about six. Since nobody knows what causes any one persons CIDP you can't be sure that a switch would be of benefit. I'm staying with IVIG for now. I've been getting infusions for almost a year and a half now and it took about 11 months to see much improvement. It is not dramatic improvement for me but definitely an improvement. My veins are still pretty easy to stick, but I may need to move to a port at some point. Some people have said they prefer the port as it is quicker and easier.