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Bladder Cancer Group: Introduce yourself and connect with others

Bladder Cancer | Last Active: 5 hours ago | Replies (338)
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@1rrussell

I’m Randy, 71 and live near Prescott, Az. In April 2024 I had a large tumor removed from my bladder, followed by chemo from May to August. Part of the original plan then was to remove my bladder and I now have a neobladder. My follow-up checks have been clean.
I struggle with no bladder control and wear diaper at night and large Depend pads all day. Is this normal and will I ever get back a little bladder control?

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Replies to "I’m Randy, 71 and live near Prescott, Az. In April 2024 I had a large tumor..."
jowilliams1 | @jowilliams1 | Jun 6 9:02am

Hi Randy. I have a neobladder as well (though I'm female). There are pelvic floor therapists (specifically) that can really help. If your surgeon hasn't recommended one I would suggest you try to locate one. I think that will greatly benefit you!

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Sue, Volunteer Mentor | @sepdvm | 3 days ago

Congratulations on clean scans. My husband had his neobladder surgery in 2021. His bladder control improved over time with proper exercise use but he still has leaks at night. He used pads in underwear for the first couple of years. Strictures have caused him issues and he must now use a catheter 3 times a day to empty bladder and keep urethra open. Pelvic floor therapy is helpful.

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